The Big Issues Raised by the Acquisition of PatientsLikeMe and Other Patient Data Transactions By Susannah Fox, Jane Sarasohn-Kahn and Lisa Suennen I’ve lived long enough to have learned The closer you get to the fire the more you get burned But that won’t happen to us Cause it’s always been a matter of trust -A […]
Search Results for: internet access
Paging fans of Dr. Google
Every few weeks someone posts some version of “Don’t confuse your Google search with my medical degree.” It appears on Facebook, on Twitter, on coffee mugs, and on signs in doctor’s offices. Today I found out that there’s a doctor who sings about it in English and in Swedish. Here’s one fabulous reply, written by Trisha […]
Rare but not alone
Ashley Eakin, a filmmaker, is being brave and showing her real self online. She does it on behalf of the kids who share her rare condition so they can see themselves, in her image — a beautiful example of how the internet can be a bridge to hope and inclusion. Watch: When she mentions in […]
Building the evidence base for peer health advice
Imagine an intervention that produces results like these: One-third of those living with chronic conditions are now more likely to take necessary medications. The risk of admission to a neonatal ICU during first year of life reduced by 63%. People with with poorly-controlled diabetes were able to achieve a 1.1-point reduction in their HbA1c. Each […]
Public Q&A: Empowering people in their relationships with clinicians
In the spirit of public Q&A, I’m sharing an intriguing question I received recently from a community colleague. Check out my answer and then add your ideas and suggestions in the comments below. Do you know of any particularly good or interesting services to empower patients in their relationships with doctors, especially ones which involve […]
Well/Connected
Dr. Joe Kvedar interviewed me for his podcast, Well/Connected, and I thought I’d share footnotes for all the resources I mentioned. Key findings from the national survey of 14- to 22-year-olds focused on digital health and social media use, sponsored by Hopelab and Well Being Trust, which took a special look at people living with […]
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