– Joseph Newton Pew Jr., 1946 (a key part of the history of the Pew Charitable Trusts) I explain why this has become one of my mottos in an interview with Chris Snider: Just Talking.
research issues
“There are 3 types of people…”
“People who think that people with disabilities can’t do anything, that we’re fragile and in need. People who think we are inspirational and think we can fly to the moon if we wanted to. People who treat us like everyone else, who know that we’ll ask for help if we need it but otherwise we’re […]
Participatory Research
I can’t imagine conducting research, especially about the internet, without welcoming people into the process, so I wrote up some examples of how I use social tools in my work.
“Privacy leaves the room when cancer enters.”
– John Wilbanks talking about unintended consequences of informed consent. Read a summary of his talk and a clarification.
Unpacking self-tracking
One of the “top tweets” of this week’s Health Datapalooza was one I dashed off on my way to the event: 1 in 4 U.S. internet users track their own health data online – @pewinternet pewrsr.ch/khtiMB #healthdata — SusannahFox (@SusannahFox) June 5, 2012 It was great to see how this research tidbit was treated like […]
Why fieldwork in patient communities is essential
Thanks to a tweet from Brian Ahier, I’m re-reading Internet Health Resources from 2002. It was the first time we’d done extensive online fieldwork in addition to national phone surveys, yielding stories like this one: One mother told how, when she suspected that her daughter had a serious respiratory infection called RSV, she looked it […]
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