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Susannah Fox

I help people navigate health and technology.

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pts as teachers

Learning about PhotoVoice

September 17, 2013 By Susannah Fox Leave a Comment

A man in Tanzania sorts his medication while his mother looks on.

At yesterday’s A Healthy America event, I met Yanique Redwood, President & CEO of the Consumer Health Foundation. In researching more about her work, I found that she uses a qualitative research method called PhotoVoice, described as “participatory photography for social change.” Check out some of the projects enabled by PhotoVoice: The Dirty Truth Campaign in Atlanta, […]

Filed Under: participatory research, pts as teachers

3 articles worth your time

July 3, 2013 By Susannah Fox 3 Comments

Here are three articles spinning around in my head today: A Letter to Patients With Chronic Disease – written by Rob Lamberts, MD, in 2010, tweeted this morning by Ronan Kavanagh, MD. Key quote: “So when you approach a doctor – especially one you’ve never met before – you come with a knowledge of your disease […]

Filed Under: e-patient stories, key people, net-friendly docs, pts as teachers, research issues Tagged With: #whatifhc

A picture worth a thousand “What if health care..?” words

April 26, 2013 By Susannah Fox 4 Comments

What if kids were given the support to participate in and understand their own health care? – @savingcase For more health care dreams, please see: What if health care…? (Storify) Or any of my other #whatifhc posts.  

Filed Under: pts as teachers Tagged With: #whatifhc

“Every Mom and Dad of a child with a rare disease has earned an honorary PhD”

March 8, 2013 By Susannah Fox 5 Comments

People in academic regalia, photo by 1yen on Flickr

That’s a line from an essay entitled “cri de cure” by Ethan Perlstein. I tweeted it and got some great replies: Hahaha. I’m often asked by medical teams if I am a MD or nurse. I tell them ‘no,but I have a PhD when it comes to my daughter’ – @SolidFooting Yes! I know more […]

Filed Under: pts as teachers Tagged With: National Organization For Rare Disorders, Rare Disease

Video: The “e” is for engagement

December 10, 2012 By Susannah Fox Leave a Comment

The Center for Connected Health did a lovely job with their symposium videos, split-screening so you can see the slides. My speech is up, along with all the other keynotes: Full text (or a version of it) is available here, along with a discussion thread.

Filed Under: pts as teachers, trends & principles Tagged With: california healthcare foundation, connected health, Pew Internet, Tracking for Health, video

The e is for engagement

October 29, 2012 By Susannah Fox 13 Comments

Painting: "Skinny Genes" by Regina Holliday for Stanford Medicine X

What if we redefined the Quantified Self movement to include everyone who keeps a pair of “skinny jeans” in their closet? What if the 85% of U.S. adults who own a cell phone understood that it’s potentially a tool for health tracking? What if everyone designing health care tools first talked with patients and caregivers […]

Filed Under: pts as teachers, trends & principles Tagged With: california healthcare foundation, connected health, Katie McCurdy, Pew Internet, Quantified Self, Stanford Medicine X, Tom Ferguson, tracking, Tracking for Health

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Recent Comments

  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33
  • Samantha Bridge on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Great conversation. It has been my experience as a nurse to have the conversation before the testing. What is the…” May 4, 09:05
  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12

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