Like many people, I’m intrigued by the 23andme drama. Here’s a quote I scribbled down at Health Foo: The data and genomics revolution is akin to the print revolution. Hundreds of years ago, peasants looked at this converted wine press and asked why we need more Bibles when nobody can read. The printing press triggered a […]
policy issues
Ribbons, ribbons, everywhere
Peggy Orenstein‘s article, “Our Feel-Good War on Breast Cancer,” is worth one of your precious NYTimes.com chits (unless, of course, you’re a subscriber, in which case you have hopefully already devoured it). But don’t just take my word for it, read this post by Katherine O’Brien of the Metastatic Breast Cancer Network — the bloggers […]
“A jumbo jet a day” – who said it?
I’m looking into public perceptions of patient safety as a possible research topic and have run up against a question I can’t answer. Can you help?
The Waiting Room
Quick: check the listings for “The Waiting Room.” If it’s playing in your city, go. (Run if you live in Boston – the director will be interviewed by Alexandra Drane tonight). I went to a screening last night and agree with Ann Hornaday, a movie critic for The Washington Post, who gave it her highest […]
“Privacy leaves the room when cancer enters.”
– John Wilbanks talking about unintended consequences of informed consent. Read a summary of his talk and a clarification.
“…asking ‘who owns the data?’ is a meaningless, time-wasting, and shallow conceptualization of the issue at hand.”
– Fred Trotter, in an article about patient data that reminded me of Daniel Solove’s A Taxonomy of Privacy
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