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Susannah Fox

I help people navigate health and technology.

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Solvers

Covid and the Future of Health

May 10, 2024 By Susannah Fox Leave a Comment

Front entrance of Hotel Tabard Inn

You are cordially invited to a book talk & reception on Wednesday, May 29, at 7pm at the Tabard Inn in Washington, DC. Ryan Prior, author of The Long Haul, and I will discuss how innovative patients are changing medicine for the better and where we see this grassroots movement heading next. If you haven’t […]

Filed Under: key people, Networkers, Solvers Tagged With: Long Covid, Rebel Health, Ryan Prior, The Long Haul

Wow! How? Peer Warmline

May 9, 2024 By Susannah Fox Leave a Comment

Wow! How? Health

This essay is part of my LinkedIn newsletter series: Wow! How? Health. About two million people in North Carolina experience a mental health or substance use disorder crisis each year. Historically, about half did not receive treatment because of cost, leading to repercussions for families, communities, and individuals. A new Peer Warmline, staffed by counselors […]

Filed Under: Champions, Networkers, peer-to-peer health care, policy issues, Solvers Tagged With: Kody Kinsley, mental health, North Carolina, peer counseling, peer-to-peer healthcare, Promise Resource Network, Wow! How? Health

Q&A with Deborah Kalb

May 6, 2024 By Susannah Fox Leave a Comment

Book cover: Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care by Susannah Fox. Blue type on a yellow field

Deborah Kalb’s blog is a treasure chest full of Q&As with authors and illustrators and I’m honored to now be part of it. 1. What inspired you to write Rebel Health, and how was the book’s title chosen? As a researcher, I spend time in communities led by patients and caregivers who build new medical and assistive […]

Filed Under: Champions, Networkers, Solvers Tagged With: AA, ACT-UP, Black Panther Party, disability, Esther Perel, Fountain House, La Leche League, Rebel Health

Wow! How? Hope for Henry

April 26, 2024 By Susannah Fox Leave a Comment

Cartoons of superhero kids getting medical treatments like an EEG, Central Line Dressing Change, COVID testing, and IV Placement or Blood Draw

Imagine being a little kid and facing not only serious illness, but all the uncomfortable, scary treatments associated with hospitalization: blood draws, IV placements, and scans. Then you find out that you can earn prizes for every medical procedure you go through, thanks to an incentive program called Super Rewards for Super Kids. Kids love […]

Filed Under: Solvers Tagged With: Allen Goldberg, Hope for Henry, Laurie Strongin, Rare Disease, rare diseases, Wow! How? Health

The Other 80

April 22, 2024 By Susannah Fox 2 Comments

Screenshot from Derek Sivers' TED talk How to start a movement

Claudia Williams created The Other 80 podcast to talk about how medical care only accounts for 20% of health outcomes. The other 80% includes factors like food, housing, transportation options, social connection, etc. I was honored to be interviewed for episode #27, now available wherever you listen to podcasts. You can hear in my voice […]

Filed Under: Champions, Networkers, peer-to-peer health care, Seekers, Solvers Tagged With: #wearenotwaiting, Claudia Williams, Dana Lewis, Derek Sivers, Hugo Campos, John Costik, Open Notes, Patient-Led Research Collaborative, Rebel Health, Sara Riggare, Stanford Medicine X

Wow! How? PEARS

April 12, 2024 By Susannah Fox Leave a Comment

Wow! How? Health

Tal Golesworthy lives with Marfan syndrome, which is characterized by long bones, flexible joints, eye problems, and, most threateningly, weakness at the root of the aorta. Over time, this major blood vessel becomes enlarged and, if left untreated, ruptures. Clinicians told Golesworthy he had few options, none of them attractive: wait and potentially experience a […]

Filed Under: Champions, Solvers Tagged With: Marfan syndrome, Rebel Health, Tal Golesworthy, Wow! How? Health

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Recent Comments

  • Lisa Suennen on Wow! How? Community: “That is a beautiful story. Kids always have the best answers” Aug 29, 11:31
  • Susannah Fox on Lessons learned about hospice care: “Zoe, thank you for the unvarnished comment! We need to go into end of life with our eyes open in…” Aug 5, 14:20
  • Zoe on Lessons learned about hospice care: “I despise home hospice and the entire industry can kiss my ass. I was duped into caring for my dying…” Aug 5, 03:45

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