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Susannah Fox

I help people navigate health and technology.

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patient networks

Peer-to-peer health care in 5 minutes or less

June 26, 2012 By Susannah Fox 3 Comments

This is a highlight reel of my keynote at last year’s Medicine 2.0 conference. I’ll be speaking at Medicine 2.0 Boston on Sept. 15 to discuss patient-provider collaboration for patient safety.

Filed Under: patient networks, peer-to-peer health care, pt/doc co-care, trends & principles Tagged With: peer-to-peer healthcare

When Patients Band Together: Far From a Disgrace

September 8, 2011 By Susannah Fox 23 Comments

When it comes to news sites, I love scanning readers’ comments as much as the original articles. Comments are an unfiltered feed, a window into public opinion (in other words, catnip for someone like me). One thread caught my eye recently. Ron Winslow wrote a very nice piece in the Wall Street Journal about how […]

Filed Under: patient networks, pt/doc co-care Tagged With: Advocates, Cardiologist, Mainstream Media, Mayo Clinic, patient groups, Patient Network, Peer To Peer, Rare Disease, rare diseases, Roadblocks, Ron Winslow, Scad, Universal Health Care, Using Social Networks, Virtual Registry, Wall Street Journal

Alpha Geeks in Health Care

July 6, 2011 By Susannah Fox 28 Comments

Here’s how tech guru Tim O’Reilly describes his work: So often, signs of the future are all around us, but it isn’t until much later that most of the world realizes their significance. Meanwhile, the innovators who are busy inventing that future live in a world of their own. They see and act on premises […]

Filed Under: patient networks, trends & principles Tagged With: Alpha Geek, Clinician, health care, Health Information Exchange, Innovators, librarians, Market Opportunities, Public Health, Public Health Workers, Rare Disease, rare diseases, Technology Gaps

Examples, please: peer-to-peer healthcare

June 27, 2011 By Susannah Fox 83 Comments

I’m writing an article and would love to tap into this community’s knowledge. I know of a few examples of clinical practices using Facebook and Twitter to connect with patients, such as MacArthur OB/GYN, but I’d love to learn about other examples, especially ones which use social networking tools to connect patients and caregivers with […]

Filed Under: net-friendly docs, patient networks Tagged With: asthma, Behavior Change, Bonus Points, caregivers, Clinical Practices, Clinicians, Facebook, Health Groups, High Blood Pressure, Macarthur, National Organization For Rare Disorders, Networking Tools, Notoriety, Ob Gyn, Peer To Peer, Population Level, Powerful Resources, Social Networking, Twitter, Weight Watchers, Writ

PatientsLikeMe goes wide

April 11, 2011 By Susannah Fox 6 Comments

PatientsLikeMe opened up to every condition today. From their press release: Today, PatientsLikeMe (www.patientslikeme.com) announces the expansion of its platform and invites patients with any condition to join. The five-year-old free online health data-sharing website was previously only available to patients with 22 chronic conditions (including ALS, Parkinson’s disease, HIV, depression, epilepsy, fibromyalgia, multiple sclerosis and organ […]

Filed Under: found on the net, patient networks, peer-to-peer health care Tagged With: patientslikeme, peer-to-peer healthcare

Peer-to-peer healthcare on NPR

April 4, 2011 By Susannah Fox 8 Comments

To me, there are two types of breaking news in health care: the macro and the micro. Macro health news breaks when there is a natural disaster, a scientific breakthrough, or a new twist in a policy debate (see: “ACOs“). I read up on the facts and try to make sense of the latest turn […]

Filed Under: patient networks

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