In response to popular demand, my Pew Research colleagues and I posted detailed demographic tables for the “Tracking for Health” study. I should warn you: These are not pretty tables. You may need a ruler to keep track of the rows and columns since we crammed as much data into each table as possible. But […]
“Every Mom and Dad of a child with a rare disease has earned an honorary PhD”
That’s a line from an essay entitled “cri de cure” by Ethan Perlstein. I tweeted it and got some great replies: Hahaha. I’m often asked by medical teams if I am a MD or nurse. I tell them ‘no,but I have a PhD when it comes to my daughter’ – @SolidFooting Yes! I know more […]
Was it a keynote? Or a seismic warning?
Eric Topol’s keynote at HIMSS13, a massive health IT event, was a tsunami of ideas and visions for the future of health care. I wasn’t there, so I salvaged what washed up on my shore as a Storify. Why? Because I’m an internet geologist. I look for early warning signs of possible futures and Topol […]
Rare Disease Day 2013
People living with rare conditions inspire my work every day. A few resources to check out: Follow @RareDiseaseDay on Twitter or subscribe to my Rare Disease list Read Wendy White’s post on e-patients.net: Rare Disease Day 2013: Help Spread Awareness Read the Pew Research Center’s report featuring insights from people living with rare conditions: Peer-to-peer […]
Tell all the truth but tell it slant
Scanning tweets from the current Institute of Medicine event (#iomPwP) brought a poem to mind: Tell all the Truth but tell it slant — Success in Circuit lies Too bright for our infirm Delight The Truth’s superb surprise As Lightning to the Children eased With explanation kind The Truth must dazzle gradually Or every […]
How many people use “ask a doctor” sites?
Here’s a question I received that I thought was worth a public answer: How many people go online to seek a doctor’s opinion about something, such as on an “ask a doctor” site? Pew Research has not asked a survey question that specifically measures that activity, but we have something pretty close, based on our […]
Recent Comments