My friend Wendy Sue Swanson, MD, delivers a passionate argument for listening more than talking online and, in that way, seeing “where myth is being created” so she can better infuse her own communications with facts. I couldn’t agree more, so I’m adding it to my list of “participatory research” resources for my Stanford Medicine […]
Shared moment
This poem captures how I feel about being online sometimes, the immediacy and intimacy of a shared moment with unseen people. So, here it is, you fellow people who share: Eastern Standard Time By Billy Collins Poetry speaks to all people, it is said, but here I would like to address only those in my […]
Kate Crawford on algorithmic illusions
I’m going to teach a 90-minute class on participatory research at Stanford Medicine X in September, so I’m going to start blogging resources I plan to incorporate (or that simply inspire me). As always, I’d welcome suggestions, comments, and questions. First up, Kate Crawford’s Strata 2013 talk about “big data”:
Who provides the fuel for the health data fire? Hint: Look in the mirror.
“If iron ore was the raw material that enriched the steel baron Andrew Carnegie in the Industrial Age, personal data is what fuels the barons of the Internet age.” – a line from Somini Sengupta’s article in the Sunday New York Times, “Letting Down Our Guard With Web Privacy.” I think personal data is fueling health […]
Tracking for Health: Detailed Demographics
In response to popular demand, my Pew Research colleagues and I posted detailed demographic tables for the “Tracking for Health” study. I should warn you: These are not pretty tables. You may need a ruler to keep track of the rows and columns since we crammed as much data into each table as possible. But […]
“Every Mom and Dad of a child with a rare disease has earned an honorary PhD”
That’s a line from an essay entitled “cri de cure” by Ethan Perlstein. I tweeted it and got some great replies: Hahaha. I’m often asked by medical teams if I am a MD or nurse. I tell them ‘no,but I have a PhD when it comes to my daughter’ – @SolidFooting Yes! I know more […]
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