Amy Dockser Marcus writes with the sensitivity and precision of a scientist, which is why I was thrilled that she recently turned her attention to the patient-led research being conducted by people with LongCovid, which affects an estimated 10-20% of COVID-19 patients. The Wall Street Journal‘s pay wall may prevent you from reading the full […]
Crazy, crazy, LongCovid, obvious
LongCovid is an extraordinary challenge to the human body. It’s been met with an extraordinary response from the human spirit. As I wrote in a previous post, we are watching patients, caregivers, clinicians, researchers, and policymakers move through the stages of peer-to-peer health innovation at a fast clip. Faster than I’ve ever seen in my […]
HealthChangers: Mark Ganz
I learn from every conversation I have with Cambia’s outgoing CEO, Mark Ganz — lucky for everyone, we recorded this latest one! Here’s a quote I loved: “A wise person once told me that the way to make progress in some ways is to think of a bowling analogy. You don’t try to knock 10 pins down […]
Case study: Breast cancer
When we get sick or receive a new diagnosis, we often feel alone, but we shouldn’t. There are people who have been in the same situation and are eager to help if they only knew how to find us. That is the case with my friend Meagan. She was recently diagnosed with breast cancer. She […]
What if we had people’s trust?
I’d like to revive the spirit of the “What if health care…?” conversation, this time in the context of data and trust. What could we build with health data if we had people’s trust? How about: An algorithm to prevent suicide. An app to prevent addiction relapse. An app to help adolescents living with chronic […]
Acceptable uses of health data
My former colleagues at the Pew Research Center continue to publish the best research on the impact of the internet on American society, bar none. My fandom extends to creating a fact sheet summarizing their recent surveys about Americans’ data worries. The results are indications about what people think and feel about the shifting technology […]
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