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Susannah Fox

I help people navigate health and technology.

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Susannah Fox

The Data Puzzle of Our Time

February 16, 2021 By Susannah Fox 4 Comments

Gloved hands administering a shot to an arm

When the pandemic hit, we needed both grassroots and industrial-strength data platforms to effectively respond to the crisis. I have written about scrappy, patient-led data innovation. Today I want to share a broader view, thanks to a conversation I recently had with Tim Paydos, Vice President & General Manager of IBM Government. (I’m proud to disclose […]

Filed Under: health data, key people Tagged With: COVID19, IBM

“I’ve been there, let’s change things” innovation

February 11, 2021 By Susannah Fox 3 Comments

Meet Equip - benefits of treatment

My mission is to boost the signal for peer health advice at every level of our health care system. Today I am thrilled to share that Equip, one of the peer-powered startups I advise, has closed $13 million in Series A financing, spurring it toward the transformation of eating disorder treatment. Kristina Saffran, CEO of Equip, recovered […]

Filed Under: peer-to-peer health care Tagged With: eating disorders, Equip, Erin Parks, Harvard Business Review, Kristina Saffran

LongCovid’s citizen scientists

February 1, 2021 By Susannah Fox 9 Comments

Flock of black birds flying together in a blue sky

Amy Dockser Marcus writes with the sensitivity and precision of a scientist, which is why I was thrilled that she recently turned her attention to the patient-led research being conducted by people with LongCovid, which affects an estimated 10-20% of COVID-19 patients. The Wall Street Journal‘s pay wall may prevent you from reading the full […]

Filed Under: participatory research, peer-to-peer health care, research issues, social media Tagged With: Amy Marcus, Emily Sirotich, Eric Topol, Gina Assaf, Helen Burstin, LongCovid, peer-to-peer healthcare, Wall Street Journal

Crazy, crazy, LongCovid, obvious

January 25, 2021 By Susannah Fox 15 Comments

Flock of geese flying in one direction together

LongCovid is an extraordinary challenge to the human body. It’s been met with an extraordinary response from the human spirit. As I wrote in a previous post, we are watching patients, caregivers, clinicians, researchers, and policymakers move through the stages of peer-to-peer health innovation at a fast clip. Faster than I’ve ever seen in my […]

Filed Under: patient networks, peer-to-peer health care, pts as teachers Tagged With: Body Politic, Kevin Kelly, LongCovid, NIH, peer-to-peer healthcare

HealthChangers: Mark Ganz

December 16, 2020 By Susannah Fox 6 Comments

Ten bowling pins lined up

I learn from every conversation I have with Cambia’s outgoing CEO, Mark Ganz — lucky for everyone, we recorded this latest one! Here’s a quote I loved: “A wise person once told me that the way to make progress in some ways is to think of a bowling analogy. You don’t try to knock 10 pins down […]

Filed Under: key people, reforming hc, trends & principles Tagged With: Cambia Health Solutions, Mark Ganz

Case study: Breast cancer

December 7, 2020 By Susannah Fox 16 Comments

Sunflower in a field of other sunflowers

When we get sick or receive a new diagnosis, we often feel alone, but we shouldn’t. There are people who have been in the same situation and are eager to help if they only knew how to find us.  That is the case with my friend Meagan. She was recently diagnosed with breast cancer. She […]

Filed Under: e-patient stories, peer-to-peer health care Tagged With: breast cancer, case study, peer-to-peer healthcare, sunflowers

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Recent Comments

  • Liz on Rare Disease in the NYT: “The author’s willingness to grapple with her competing instincts is admirable. As a former “medical mom,” I found the peer-connection…” Jul 1, 21:46
  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07
  • Jill H. on Case study: Trevor’s disease: “Hello Carrie, I am curious how your son is doing after the surgery? Were you able to fix the locked…” May 28, 19:07

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