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Susannah Fox

I help people navigate health and technology.

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Susannah Fox

Patient Involvement Makes People Smile–Susannah Fox

November 10, 2008 By Susannah Fox 1 Comment

Ted Eytan’s Photo Friday features a crowd of chronic disease care providers listening to patients tell their stories — and smiling as they see the impact of what they do. As I wrote in the comments, I’ll post here soon with more notes, but this photo is a good start toward understanding the impact of […]

Filed Under: found on the net Tagged With: chronic disease, e-patients, providers, Ted Eytan

Crowdsourcing a Survey: Reassured? Overwhelmed? Eager? Confused?–Susannah Fox

November 5, 2008 By Susannah Fox 8 Comments

The Pew Internet Project is finalizing our fall health survey and we are now in the painful cut phase. Here’s a question I’m hoping to save in a shorter form: At any point in your last search for health information online did you feel any of the following things? At any point, did you feel…?

Filed Under: demographics Tagged With: data, pew internet project, survey

Participatory Medicine: Text of my speech at the Connected Health symposium–Susannah Fox

November 3, 2008 By Susannah Fox 3 Comments

Light bulbs in the night sky - a photo by Ted Eytan

I should have posted this when I posted my slides, but better late than never.

Filed Under: trends & principles Tagged With: connected health, health 2.0, participatory medicine, pew internet project, social media

Help Me Choose: Sessions at the Chronic Disease Care Conference–Susannah Fox

November 3, 2008 By Susannah Fox 4 Comments

I will be heading to San Francisco this week to attend the Chronic Disease Care conference sponsored by the California HealthCare Foundation. Registration is closed but I promise to take notes on as many panels as possible. Please help me choose from the smorgasbord of topics and I’ll make you a plate.

Filed Under: reforming hc Tagged With: california healthcare foundation, chronic disease, diabetesmine, e-patients, hellohealth, patientslikeme

Participatory Medicine, Connected Health–Susannah Fox

October 30, 2008 By Susannah Fox 14 Comments

The Center for Connected Health’s 2008 Symposium was held in Boston on October 27-28, 2008.  I gave a talk entitled, “Participatory Medicine: How User-Generated Media are Changing American Attitudes and Actions, Online and Off.” As always, the conversations I had with people after the speech were the best part of the event. Lena Sorenson, RN, […]

Filed Under: trends & principles Tagged With: data, e-patients, participatory medicine

Connected Health Symposium 2008–Susannah Fox

October 24, 2008 By Susannah Fox 4 Comments

An East Coast contingent of the e-patients group will be in Boston on Monday and Tuesday, speaking and listening at the Connected Health symposium. I’m going to present the Pew Internet Project‘s latest data on social media and how the participatory Web is creating opportunities for participatory medicine. Danny Sands and “e-Patient Dave” deBronkart will […]

Filed Under: general

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Recent Comments

  • Lisa Suennen on Wow! How? Community: “That is a beautiful story. Kids always have the best answers” Aug 29, 11:31
  • Susannah Fox on Lessons learned about hospice care: “Zoe, thank you for the unvarnished comment! We need to go into end of life with our eyes open in…” Aug 5, 14:20
  • Zoe on Lessons learned about hospice care: “I despise home hospice and the entire industry can kiss my ass. I was duped into caring for my dying…” Aug 5, 03:45

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