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Susannah Fox

I help people navigate health and technology.

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Susannah Fox

Participatory Medicine: Text of my speech at the Connected Health symposium–Susannah Fox

November 3, 2008 By Susannah Fox 3 Comments

Light bulbs in the night sky - a photo by Ted Eytan

I should have posted this when I posted my slides, but better late than never.

Filed Under: trends & principles Tagged With: connected health, health 2.0, participatory medicine, pew internet project, social media

Help Me Choose: Sessions at the Chronic Disease Care Conference–Susannah Fox

November 3, 2008 By Susannah Fox 4 Comments

I will be heading to San Francisco this week to attend the Chronic Disease Care conference sponsored by the California HealthCare Foundation. Registration is closed but I promise to take notes on as many panels as possible. Please help me choose from the smorgasbord of topics and I’ll make you a plate.

Filed Under: reforming hc Tagged With: california healthcare foundation, chronic disease, diabetesmine, e-patients, hellohealth, patientslikeme

Participatory Medicine, Connected Health–Susannah Fox

October 30, 2008 By Susannah Fox 14 Comments

The Center for Connected Health’s 2008 Symposium was held in Boston on October 27-28, 2008.  I gave a talk entitled, “Participatory Medicine: How User-Generated Media are Changing American Attitudes and Actions, Online and Off.” As always, the conversations I had with people after the speech were the best part of the event. Lena Sorenson, RN, […]

Filed Under: trends & principles Tagged With: data, e-patients, participatory medicine

Connected Health Symposium 2008–Susannah Fox

October 24, 2008 By Susannah Fox 4 Comments

An East Coast contingent of the e-patients group will be in Boston on Monday and Tuesday, speaking and listening at the Connected Health symposium. I’m going to present the Pew Internet Project‘s latest data on social media and how the participatory Web is creating opportunities for participatory medicine. Danny Sands and “e-Patient Dave” deBronkart will […]

Filed Under: general

41% of Adults are “Activated Patients”

October 21, 2008 By Susannah Fox 4 Comments

Two sets of hands sort pills into a pillbox

The Center for Studying Health System Change has released another information-packed report, How Engaged Are Consumers in Their Health and Health Care, and Why Does It Matter.   The researchers created a “Patient Activation Measure” and apparently 41% of adults are what we might call e-patients (empowered, equipped, etc.).

Filed Under: demographics, research issues Tagged With: data, e-patient, survey

Patient Power: Andrew Schorr–Susannah Fox

October 6, 2008 By Susannah Fox 6 Comments

Andrew Schorr‘s recent comment also merits a separate post: I am a 12-year leukemia survivor and very grateful to the ACOR community members who helped me numerous times along the way. I have dedicated my life to creating community online and also, in a supplementary way, on radio. But my concept of community is a […]

Filed Under: e-patient stories, others' e-patient stories Tagged With: Andrew Schorr, Better Health, Bladder Cancer, Brain Tumor, Cnn, Common Goal, Generous Support, Health Care Professionals, Health Concerns, Lung Cancer, M D Anderson, Medical Centers, Myomectomy, Patient Comments, Patient Power, Renowned Experts, Team Approach, Trusera, Uterine Fibroids, Young Adults

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Recent Comments

  • Susannah Fox on Lessons learned about hospice care: “Thank you for sharing!” Jul 30, 12:46
  • Samitivej Hospital on How I choose which conferences to attend: “Such a thoughtful framework! I especially relate to how much the organizer and audience shape the whole experience. For me,…” Jul 28, 07:42
  • DEANFoundation on Lessons learned about hospice care: “This deeply honest blog sheds light on the hidden challenges caregivers face during hospice care The DEAN Foundation in India…” Jul 21, 09:07

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