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Susannah Fox

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Archives for June 2019

Mapping the health data landscape

June 17, 2019 By Susannah Fox 18 Comments

1490 map of the world by Henricus Marcellus shows great detail for Europe but only a rough idea of Africa and Asia

I think our understanding of the current health data landscape is about as accurate as a map of the world in the 15th century:  excruciatingly detailed in the areas we know well, but hilariously, woefully — even dangerously — incomplete when it comes to the areas of health and health care that lie beyond our […]

Filed Under: health data Tagged With: Cambia Health Solutions, electronic medical record, Health Data, Sara Riggare

We need a digital health Cajun Navy

June 10, 2019 By Susannah Fox 8 Comments

A baby with red spots on their face looks straight at the camera

The Cajun Navy – people who rally their personal boats to rescue hurricane survivors – is an example of how ordinary citizens are the true first responders in a disaster zone. Instead of seeing locals as liabilities, the Federal Emergency Management Agency has started looking for ways to support their work. As David Graham wrote in The Atlantic: […]

Filed Under: hc's problem list, peer-to-peer health care, social media Tagged With: Cajun Navy, immunizations, measles, peer-to-peer healthcare, Wendy Sue Swanson

Update: A Seat at the Table

June 1, 2019 By Susannah Fox 7 Comments

Fortifications at Colonial Willamsburg by Kate Mereand-Sinha

Last November I attended FAREcon, an annual event devoted to food allergy research and education. I published my notes in a long, deep-dive post that included one short section on pending litigation (below). I’m thrilled to report a positive update: “A federal appeals court Friday ruled against the tavern that refused to let the child […]

Filed Under: key people, policy issues Tagged With: disability, food allergy, Rare Disease

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Recent Comments

  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33
  • Samantha Bridge on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Great conversation. It has been my experience as a nurse to have the conversation before the testing. What is the…” May 4, 09:05
  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12

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