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Susannah Fox

I help people navigate health and technology.

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When Patients Band Together: Far From a Disgrace

September 8, 2011 By Susannah Fox 23 Comments

When it comes to news sites, I love scanning readers’ comments as much as the original articles. Comments are an unfiltered feed, a window into public opinion (in other words, catnip for someone like me). One thread caught my eye recently. Ron Winslow wrote a very nice piece in the Wall Street Journal about how […]

Filed Under: patient networks, pt/doc co-care Tagged With: Advocates, Cardiologist, Mainstream Media, Mayo Clinic, patient groups, Patient Network, Peer To Peer, Rare Disease, rare diseases, Roadblocks, Ron Winslow, Scad, Universal Health Care, Using Social Networks, Virtual Registry, Wall Street Journal

Help Me Choose: Sessions at Medicine 2.0–Susannah Fox

August 31, 2011 By Susannah Fox 4 Comments

In 2008, I asked for this community’s help in choosing which sessions to attend at the Chronic Disease Care conference sponsored by the California HealthCare Foundation. I loved the input I got and wrote 3 posts on what I learned about spreading improvement in care, how to include patient voices, and how to discuss emerging […]

Filed Under: found on the net

Mind the Gap: Peer-to-peer Healthcare–Susannah Fox

August 1, 2011 By Susannah Fox 1 Comment

Update: My notes are now online: Mind the Gap: Peer-to-peer HealthCare. The newest material is in the section entitled, “Getting Past the Early-Adopter Stage” — roadblocks, opportunities, and beacons for change (patient leaders, clinician leaders, and technology leaders). Not surprisingly, the NIH audience members suggested adding “policy leaders” to that lineup. It was an extraordinarily […]

Filed Under: positive patterns, trends & principles

The e-Perspectives of e-Patient Dave–Susannah Fox

July 27, 2011 By Susannah Fox Leave a Comment

Our own e-Patient Dave is featured in an extensive interview with Kim Chandler McDonald, an Australian journalist who is passionate about what she calls the “meHealth movement.” Part one of their conversation is posted today to coincide with the TED conversation, “Let Patients Help.”

Filed Under: found on the net

What I learned at Health Foo

July 19, 2011 By Susannah Fox 18 Comments

A crowd of men and women look at a device made of Lego

Update on Feb. 7, 2019: There are so many broken links, I’m de-linking and crossing them out but not deleting them, for posterity. They once worked! Just in case anyone is curious: my notes from Health Foo, a meeting held last weekend in Cambridge, MA. It’s long, so skim for the 9 lessons if you […]

Filed Under: general, key people, medical records, positive patterns Tagged With: Health Foo

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