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Susannah Fox

I help people navigate health and technology.

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Public Q&A: Empowering people in their relationships with clinicians

January 21, 2019 By Susannah Fox 32 Comments

Painting shows three people reaching out as they climb a giant Rolodex

In the spirit of public Q&A, I’m sharing an intriguing question I received recently from a community colleague. Check out my answer and then add your ideas and suggestions in the comments below. Do you know of any particularly good or interesting services to empower patients in their relationships with doctors, especially ones which involve […]

Filed Under: patient networks, peer-to-peer health care, public Q&A Tagged With: #InventHealth, Clinicians, Facebook, Inspire, Invent Health, maker movement, patient activation, patientslikeme, peer-to-peer healthcare, Smart Patients, Streetwyze, Voro

The P stands for portability

January 18, 2019 By Susannah Fox Leave a Comment

Image of a sound board with the words "a16z podcast"

One of my core beliefs is that we need to open up access to the data, information, and tools people need to solve their own problems in health care — or at least give people the chance to direct their data to experts who can help them. I recently had the chance to be part […]

Filed Under: hc's problem list, health data, key people, medical records, policy issues Tagged With: Andreessen Horowitz, Anil Sethi, Ciitizen, Hipaa, podcasts, Sonal Chokshi, Vijay Pande

Helping people find the needle in a data haystack

January 14, 2019 By Susannah Fox 8 Comments

Needle in haystack by Madhavi Kuram on Flickr

One of the most important customer-service lessons I ever learned was from E-patient Dave: when it comes to disseminating research, give people what they need, not what you want to create. About a decade ago, Dave was on deadline to turn in slides for a presentation. He needed one key survey finding to illustrate a […]

Filed Under: demographics, research issues, social media, trends & principles Tagged With: fact sheets, HopeLab Foundation, Pew Internet, Pew Research Center, social media, survey, teens, Vicky Rideout, Well Being Trust

Well/Connected

January 11, 2019 By Susannah Fox 1 Comment

Peer to peer health advice: your community may really be your superpower

Dr. Joe Kvedar interviewed me for his podcast, Well/Connected, and I thought I’d share footnotes for all the resources I mentioned. Key findings from the national survey of 14- to 22-year-olds focused on digital health and social media use, sponsored by Hopelab and Well Being Trust, which took a special look at people living with […]

Filed Under: demographics, key people, peer-to-peer health care Tagged With: Alexandra Drane, Hhs, HopeLab Foundation, Joe Kvedar, peer-to-peer healthcare, Pew Internet, Pew Research Center, podcasts, Reframe Health, Tom Ferguson, Vicky Rideout, Well Being Trust

Peer support for when the system fails

January 7, 2019 By Susannah Fox 23 Comments

Painting of three figures wearing hospital gowns, each of whom is on a different mountaintop, reaching for each other

What do you do when you know something is wrong but you can’t find anyone to confirm your suspicions? Or when you finally identify the culprit but find out that other people are being kept in the dark? These days it’s likely that you go online and if you are lucky — or determined — […]

Filed Under: patient networks, peer-to-peer health care, policy issues Tagged With: Facebook, medical devices, peer-to-peer healthcare

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