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Susannah Fox

I help people navigate health and technology.

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We need a digital health Cajun Navy

June 10, 2019 By Susannah Fox 8 Comments

A baby with red spots on their face looks straight at the camera

The Cajun Navy – people who rally their personal boats to rescue hurricane survivors – is an example of how ordinary citizens are the true first responders in a disaster zone. Instead of seeing locals as liabilities, the Federal Emergency Management Agency has started looking for ways to support their work. As David Graham wrote in The Atlantic: […]

Filed Under: hc's problem list, peer-to-peer health care, social media Tagged With: Cajun Navy, immunizations, measles, peer-to-peer healthcare, Wendy Sue Swanson

Update: A Seat at the Table

June 1, 2019 By Susannah Fox 7 Comments

Fortifications at Colonial Willamsburg by Kate Mereand-Sinha

Last November I attended FAREcon, an annual event devoted to food allergy research and education. I published my notes in a long, deep-dive post that included one short section on pending litigation (below). I’m thrilled to report a positive update: “A federal appeals court Friday ruled against the tavern that refused to let the child […]

Filed Under: key people, policy issues Tagged With: disability, food allergy, Rare Disease

“Human stories really are what drive us…”

May 22, 2019 By Susannah Fox 2 Comments

Stanford Medicine X stage

The more we open access to the data, information, and tools people need to solve their own problems, the better. That’s the essential message of the research and consulting I’m engaged in these days, helping leaders to see the opportunities that spring, for example, from tapping into the zeitgeist of social platforms and new data […]

Filed Under: key people, peer-to-peer health care, positive patterns Tagged With: #wearenotwaiting, Dana Lewis, diabetes, Health Data, HopeLab Foundation, OpenAPS, teens, Vicky Rideout, Well Being Trust

Better health, together

May 13, 2019 By Susannah Fox 2 Comments

Peer to peer health advice: your community may really be your superpower

InquisitHealth is a company that truly understands that health is social. They are able to knit people and best practices together to create “better health, together.” What an inspiring story they share in this video about peer to peer health care! (If you are an email subscriber, be sure to click through to see this video […]

Filed Under: peer-to-peer health care Tagged With: diabetes, InquisitHealth, peer-to-peer healthcare

Trust gap: Health apps and data sharing

April 29, 2019 By Susannah Fox 21 Comments

Man on a beach blocks camera with his hand

There has been a steady drip-drip-drip of articles documenting how health apps are sharing data with third parties: Data sharing practices of medicines related apps and the mobile ecosystem: traffic, content, and network analysis, by Grundy et al. (British Medical Journal, Feb. 25, 2019) You Give Apps Sensitive Personal Information. Then They Tell Facebook. Wall […]

Filed Under: demographics, health data, policy issues, trends & principles Tagged With: Fda, Health Data, Health Privacy, Hhs, Hipaa, NHS, Trustworthiness

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Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Liz, thank you for sharing this comment! I’m sorry for your loss and the experience you went through. Thank you…” Jul 4, 12:05
  • Liz on Rare Disease in the NYT: “The author’s willingness to grapple with her competing instincts is admirable. As a former “medical mom,” I found the peer-connection…” Jul 1, 21:46
  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07

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