I will be heading to San Francisco this week to attend the Chronic Disease Care conference sponsored by the California HealthCare Foundation. Registration is closed but I promise to take notes on as many panels as possible. Please help me choose from the smorgasbord of topics and I’ll make you a plate.
Blog
Participatory Medicine, Connected Health–Susannah Fox
The Center for Connected Health’s 2008 Symposium was held in Boston on October 27-28, 2008. I gave a talk entitled, “Participatory Medicine: How User-Generated Media are Changing American Attitudes and Actions, Online and Off.” As always, the conversations I had with people after the speech were the best part of the event. Lena Sorenson, RN, […]
Connected Health Symposium 2008–Susannah Fox
An East Coast contingent of the e-patients group will be in Boston on Monday and Tuesday, speaking and listening at the Connected Health symposium. I’m going to present the Pew Internet Project‘s latest data on social media and how the participatory Web is creating opportunities for participatory medicine. Danny Sands and “e-Patient Dave” deBronkart will […]
41% of Adults are “Activated Patients”
The Center for Studying Health System Change has released another information-packed report, How Engaged Are Consumers in Their Health and Health Care, and Why Does It Matter. The researchers created a “Patient Activation Measure” and apparently 41% of adults are what we might call e-patients (empowered, equipped, etc.).
Patient Power: Andrew Schorr–Susannah Fox
Andrew Schorr‘s recent comment also merits a separate post: I am a 12-year leukemia survivor and very grateful to the ACOR community members who helped me numerous times along the way. I have dedicated my life to creating community online and also, in a supplementary way, on radio. But my concept of community is a […]
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