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Susannah Fox

I help people navigate health and technology.

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end of life

Public Q&A: My 5 favorite books on how to defend yourself against the U.S. health care system

May 24, 2024 By Susannah Fox 2 Comments

4 books: A Beginners' Guide to the End; Josie's Story; AfterShock; The Long Covid Survival Guide

Shepherd.com invites authors to write heartfelt reviews of other people’s books on a topic related to their own work. The site is a rabbit hole that you will LOVE exploring, so go ahead and click on, for example, “The best books about America’s toughest time: life in the dirty thirties” or “The best children’s books […]

Filed Under: key people, public Q&A Tagged With: BJ Miller, caregivers, end of life, Fiona Lowenstein, Jessie Gruman, Long Covid, Muriel Gillick, Shoshana Berger, Sorrel King

Engage with Grace

November 22, 2023 By Susannah Fox 4 Comments

Red leaves with water droplets

Can you and your loved ones answer these questions?  1. On a scale of 1 to 5, where do you fall on this continuum: 1 = Let me die without medical intervention; 5 = Don’t give up on me no matter what, try any proven and unproven intervention possible. 2. If there were a choice, […]

Filed Under: shared decision making Tagged With: Alexandra Drane, Arden O’Connor, Eliza Corp, end of life, Engage with Grace, family, Leigh Calabrese-Eck, Sarah Stephens Winnay, Taylor Lorenz

Elegy for A. and M.

August 31, 2020 By Susannah Fox 16 Comments

Elegy for unaccompanied viola, by Benjamin Britten

I grew up rich in cousins. I spent holidays with my first cousins and lived, starting at age 11, in the same town with second cousins (the children of my mother’s first cousin) AND a first cousin twice removed (my grandmother’s first cousin – each generation that separates us is the “removed” part). Don’t worry, […]

Filed Under: beauty and wonder, end of life Tagged With: caregivers, end of life, family

Public Q&A: COVID19 precautions and care

March 31, 2020 By Susannah Fox 12 Comments

Woman wears a white baseball cap and a cloth mask over her nose and mouth

As a trusted node on my friends’ “nerd network” (i.e., the people who are known to dig in and research everything so others may not have to) I have been asked a few questions that I’d like to share, in the hopes that other people can add their own perspectives — and new questions! Question: […]

Filed Under: peer-to-peer health care, public Q&A Tagged With: COVID19, end of life, palliative care, patientslikeme

Project management for caregivers

March 1, 2020 By Susannah Fox 22 Comments

Cancer worksheet

I am a caregiver. I help coordinate the health and home care for an elder loved one who, for the purposes of maintaining a bit of anonymity, I will call “M.” He is a healthy, happy octogenarian. We have known each other for nearly 40 years, but we are not related by blood. I am […]

Filed Under: peer-to-peer health care, shared decision making Tagged With: cancer, caregivers, design, elderly, end of life, family, Older Adults

A good death

January 19, 2018 By Susannah Fox 28 Comments

Black and white image of two hands, clasped. One person is wearing a hospital ID bracelet.

You might think, looking at the open tabs on my browser, that I’ve got death on my mind. And you would be right. My father passed away in December from melanoma. The end was about as peaceful as we could have hoped for, but it was still hard to watch. I spent most of what […]

Filed Under: end of life, peer-to-peer health care Tagged With: cancer, end of life, family, Family Caregivers

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