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Susannah Fox

I help people navigate health and technology.

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How connection can lead to change

November 11, 2020 By Susannah Fox 30 Comments

Screenshot of Harvard Business Review article about how chronic disease patients are innovating together online

In April, Harvard Business Review published my article, “How Chronic-Disease Patients Are Innovating Together Online.” Since then I’ve been collecting other stories about people gathering online to solve their own problems — an innovation pipeline powered by what I call peer-to-peer health care. Fortunately and unfortunately, there are many examples. People living with long-term effects […]

Filed Under: patient networks, peer-to-peer health care Tagged With: All of Us, Body Politic, Brene Brown, cdc, COVID19, LongCovid, Quantified Self

Why sharing is the future of healthcare

October 31, 2014 By Susannah Fox 10 Comments

An excerpt of a post on the Iodine blog: Imagine living with a condition so rare that every time you see a new doctor they confess to Googling it outside the exam room door.

Filed Under: peer-to-peer health care Tagged With: cdc, Iodine, patientslikeme, Pew Research Center

Recognizing the value of data

May 30, 2014 By Susannah Fox 42 Comments

In 1999, when I was the editor of USNews.com, the dot-com boom was in full swing. Money seemed to be gushing out of the Bay Area and some sharpies at USNews saw an opportunity to cash in. They proposed slicing out the most marketable piece of the website — the education franchise — and selling […]

Filed Under: hc's problem list, medical records, trends & principles Tagged With: big data, cdc, E-Patient Dave, Epic, Health Datapalooza, John Halamka, John Moore, Paul Levy, Robert Wood Johnson Foundation, SMARTHealthIT, USNews, VentureBeat

Going Viral Against HIV and STIs

December 10, 2010 By Susannah Fox 5 Comments

The New York State Department of Health AIDS Institute, in partnership with AIDS.gov, held a one-day forum on social media, HIV, and sexually transmitted infections (STI) that turned out to be an unfiltered discussion of love, truth, and technology. Why was it so smoking hot? And is this unique to conferences (or panels) about sexual […]

Filed Under: positive patterns Tagged With: AIDS.gov, cdc, GMHC, Harm Reduction Coalition, Hiv, HIV CIE, Kicesie Drew, Lee Aase, LoveHeals, Mayo Clinic, New York State, Pew Internet, Qpid.me, sexual health, STIs, susannah fox

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  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07
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