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Susannah Fox

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ARCHANGELS

Caregiving in America

September 25, 2025 By Susannah Fox 2 Comments

Caregiving is a universal experience cutting across all demographic lines, including political party affiliation

I am thrilled to share results from my collaboration with SSRS and ARCHANGELS, “Caregiving in America: The Common Thread in Every Community.” Here are excerpts from our report: Our nationally representative sample of n=2,012 U.S. adults finds that in the year prior to the survey, 36 percent of Americans provided unpaid care to a family […]

Filed Under: demographics, peer-to-peer health care, trends & principles Tagged With: ARCHANGELS, caregivers, SSRS

Rare Disease in the U.S. 2025

February 25, 2025 By Susannah Fox Leave a Comment

Two zebras

Rare disease communities welcomed me as a researcher, inspired me to highlight their ingenuity in my book, Rebel Health, and now I am honored to share results from the first probability-based national survey to measure the rare disease population. I partnered with my former Pew Research colleague Kristen Purcell, now at SSRS, to write the […]

Filed Under: peer-to-peer health care, trends & principles Tagged With: ARCHANGELS, artificial intelligence, ChatGPT, Gemini, peer-to-peer healthcare, Pew Internet, Pew Research Center, Rare Disease, Rebel Health, SSRS, telehealth

Wow! How? Ring Theory

December 14, 2023 By Susannah Fox Leave a Comment

Wow! How? Health

The swirl of holiday parties, family gatherings, and gift shopping expeditions (online and offline) have me feeling overwhelmed. And I know I’m not alone. Thanks to the 2023 ARCHANGELS Caregivers & Holidays Survey we have data on a key group of people: Take a moment to think about who in your life is going through […]

Filed Under: key people Tagged With: ARCHANGELS, Wow! How? Health

Caregiver starter pack

January 31, 2023 By Susannah Fox 13 Comments

A field of sunflowers bathed in golden light

We usually don’t get to choose when to become caregivers. A crisis hits and we are dropped into a maze populated by scary monsters, like family conflict or financial ruin, and no guides. This happened to a friend of mine recently and, when her loved one’s situation stabilized, I sent her 3 things: 1. A […]

Filed Under: peer-to-peer health care Tagged With: ARCHANGELS, Atlas of Care, BJ Miller, books I love, caregivers, Engage with Grace, Rajiv Mehta, Shoshana Berger

Public Q&A: Human-centered design

January 9, 2023 By Susannah Fox 5 Comments

Questions marks painted on pavement

A community colleague recently tweeted an intriguing question: “Looking for a rec! Our grant team would like to have more knowledge & training around #HumanCenteredDesign for research & community engagement. Does anyone have #HCD trainings, modules, or programs they love?” She tagged a few people, including me, and a public conversation ensued. People shared resources, […]

Filed Under: positive patterns, public Q&A, research issues Tagged With: ARCHANGELS, Diana Forsythe, I AM ALS, IDEO, ImproveCareNow, Marina Nitze, Nick Sinai, Solve ME

The Next Big Thing in Health

December 15, 2022 By Susannah Fox 3 Comments

AHIP: The Next Big Thing in Health podcast logo

This week I was a guest on the Next Big Thing in Health podcast (listen here or wherever you get your podcasts). I thought I’d share links to some of the people and resources I mention: ARCHANGELS WORK helps people translate the skills and experiences they acquired as caregivers into talking points for a job […]

Filed Under: peer-to-peer health care Tagged With: AA, ACT-UP, ARCHANGELS, Atlas of Care, caregivers, Long Covid, National Breast Cancer Coalition, Patient-Led Research Collaborative, podcast

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Recent Comments

  • Susannah Fox on Caregiving in America: “I hear you, Mickey! You likely already know about Caring Across Generations and other organizations that have tried to move…” Sep 25, 14:51
  • Mickey Alderman on Caregiving in America: “Interesting information. Being unpaid is a huge issue that has been ongoing for decades. The question we keep asking is…” Sep 25, 10:42
  • Lisa Suennen on Wow! How? Community: “That is a beautiful story. Kids always have the best answers” Aug 29, 11:31

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