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Susannah Fox

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trends & principles

Public Q&A: Online patient communities

April 29, 2015 By Susannah Fox 1 Comment

A community colleague recently asked me where he might find the latest numbers on the percentage of U.S. adults who participate in online patient communities. In the spirit of “public Q&A” I’d like to share my answer and ask people to add tips about other resources in the comments. Up until July 2014, I led […]

Filed Under: patient networks, peer-to-peer health care, public Q&A, trends & principles Tagged With: Pew Internet, Pew Research Center

The Value of Data

April 15, 2015 By Susannah Fox 9 Comments

Patient Records by ken fager on flickr

Health care is in danger of missing the point. (A repost from 2014 that’s relevant today thanks to announcements at HIMSS.) In 1999, when I was the editor of USNews.com, the dot-com boom was in full swing. Money seemed to be gushing out of the Bay Area and some sharpies at U.S.News saw an opportunity […]

Filed Under: hc's problem list, health data, medical records, trends & principles Tagged With: big data, E-Patient Dave, Health Data, Health Data Rights, Health Datapalooza, John Halamka, Paul Levy, SMARTHealthIT

Disconnectedness kills, connectedness heals

March 23, 2015 By Susannah Fox 4 Comments

If you crave inspiration, tune in to the Robert Wood Johnson’s Pioneering Ideas podcast by subscribing to the iTunes feed or listening on Soundcloud: https://soundcloud.com/rwjf-podcasts/final-cut-episode-8/s-q4foj

Filed Under: key people, research issues, trends & principles Tagged With: #RWJFpodcast, Robert Wood Johnson Foundation

Speak up: The network is our superpower

March 13, 2015 By Susannah Fox 5 Comments

I have a new post up on Medium, illustrated with this gem from a 2012 post: An excerpt: We can’t let misinformation—or worse—go by without comment. I think it’s time for more people to speak up in health care. More pediatricians should express their measles outrage. More people should chronicle the reality of living with chronic conditions.

Filed Under: ethics, research issues, trends & principles, understanding statistics Tagged With: Pew Research Center, Stanford Medicine X

What health care can learn from Mike Mulligan and his steam shovel

February 13, 2015 By Susannah Fox 8 Comments

Google is upgrading health search…again. In 2010, I was inspired by Animal Farm to write that Google saw some health sites as more equal than others. This time I turned to Mike Mulligan and his Steam Shovel, by Virginia Lee Burton.

Filed Under: positive patterns, reforming hc, trends & principles Tagged With: #bcsm, #whatifhc, Apple, cystic fibrosis, Erin Moore, Google, HealthKit, Hugo Campos, IBM Watson, Iodine, multiple sclerosis, patientslikeme, Quantified Self, Rare Disease, Smart Patients, Stanford Medicine X

Data for health

November 4, 2014 By Susannah Fox Leave a Comment

Last week I was part of the first community meeting for Data for Health, a program sponsored by the Robert Wood Johnson Foundation. It was held in Philadelphia on October 30 (an absolutely beautiful fall day). You can catch up on the #data4health tweets thanks to Symplur — and there were some good ones: Some themes of #Data4Health: […]

Filed Under: health data, policy issues, trends & principles Tagged With: #data4health, Health Data, Health Data Rights, Office of the National Coordinator for Health Information Technology, Robert Wood Johnson Foundation, self-tracking, Tracking for Health

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