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Susannah Fox

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trends & principles

The Value of Data

April 15, 2015 By Susannah Fox 9 Comments

Patient Records by ken fager on flickr

Health care is in danger of missing the point. (A repost from 2014 that’s relevant today thanks to announcements at HIMSS.) In 1999, when I was the editor of USNews.com, the dot-com boom was in full swing. Money seemed to be gushing out of the Bay Area and some sharpies at U.S.News saw an opportunity […]

Filed Under: hc's problem list, health data, medical records, trends & principles Tagged With: big data, E-Patient Dave, Health Data, Health Data Rights, Health Datapalooza, John Halamka, Paul Levy, SMARTHealthIT

Disconnectedness kills, connectedness heals

March 23, 2015 By Susannah Fox 4 Comments

If you crave inspiration, tune in to the Robert Wood Johnson’s Pioneering Ideas podcast by subscribing to the iTunes feed or listening on Soundcloud: https://soundcloud.com/rwjf-podcasts/final-cut-episode-8/s-q4foj

Filed Under: key people, research issues, trends & principles Tagged With: #RWJFpodcast, Robert Wood Johnson Foundation

Speak up: The network is our superpower

March 13, 2015 By Susannah Fox 5 Comments

I have a new post up on Medium, illustrated with this gem from a 2012 post: An excerpt: We can’t let misinformation—or worse—go by without comment. I think it’s time for more people to speak up in health care. More pediatricians should express their measles outrage. More people should chronicle the reality of living with chronic conditions.

Filed Under: ethics, research issues, trends & principles, understanding statistics Tagged With: Pew Research Center, Stanford Medicine X

What health care can learn from Mike Mulligan and his steam shovel

February 13, 2015 By Susannah Fox 8 Comments

Google is upgrading health search…again. In 2010, I was inspired by Animal Farm to write that Google saw some health sites as more equal than others. This time I turned to Mike Mulligan and his Steam Shovel, by Virginia Lee Burton.

Filed Under: positive patterns, reforming hc, trends & principles Tagged With: #bcsm, #whatifhc, Apple, cystic fibrosis, Erin Moore, Google, HealthKit, Hugo Campos, IBM Watson, Iodine, multiple sclerosis, patientslikeme, Quantified Self, Rare Disease, Smart Patients, Stanford Medicine X

Data for health

November 4, 2014 By Susannah Fox Leave a Comment

Last week I was part of the first community meeting for Data for Health, a program sponsored by the Robert Wood Johnson Foundation. It was held in Philadelphia on October 30 (an absolutely beautiful fall day). You can catch up on the #data4health tweets thanks to Symplur — and there were some good ones: Some themes of #Data4Health: […]

Filed Under: health data, policy issues, trends & principles Tagged With: #data4health, Health Data, Health Data Rights, Office of the National Coordinator for Health Information Technology, Robert Wood Johnson Foundation, self-tracking, Tracking for Health

Break my heart, make me change

August 1, 2014 By Susannah Fox 19 Comments

Arrows connect Give and Take; a bracket shows that Care encompasses both.

Take a deep breath and then look at this data about HIV in the U.S.: I have seen these numbers before, but never laid out so clearly and so beautifully. Thank you, Jeff Guo of the Washington Post, for breaking my heart. Thank you, because I think we all need our hearts broken anew from […]

Filed Under: peer-to-peer health care, trends & principles Tagged With: #whatifhc, AIDS.gov, Bedsider, Black Lives Matter, HIV/AIDS, Kicesie Drew, peer-to-peer healthcare, Pew Research Center, Vic Strecher

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  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33
  • Samantha Bridge on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Great conversation. It has been my experience as a nurse to have the conversation before the testing. What is the…” May 4, 09:05
  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12

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