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Susannah Fox

I help people navigate health and technology.

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research issues

One voice, many inflections: HIV clinical trial communications

May 10, 2013 By Susannah Fox 14 Comments

Demographics of Twitter, Facebook, Pinterest, Instagram, Tumblr

I’m re-sexifying the top of this post since it’s so long and I want people to get these key take-aways (read on for details on each one): Expect clinical trial participants to share news with their networks. Plan accordingly. Make your information attractive and share-able where people already are, on Facebook, Tumblr, Pinterest, etc. Find […]

Filed Under: participatory research, research issues, trends & principles Tagged With: AIDS.gov, Clinical Trials, HIV/AIDS, participatory research

Public service researcher

May 1, 2013 By Susannah Fox Leave a Comment

Vintage nurse recruitment poster: For your country's sake today. For your own sake tomorrow.

I think of myself as a public service researcher. The Pew Charitable Trusts and the California HealthCare Foundation provide the funds for the work I do and, in turn, I do everything I can to inject the findings into the public conversation: publish reports and data sets online, for free; talk to reporters and bloggers […]

Filed Under: participatory research, public Q&A, research issues, social media Tagged With: california healthcare foundation, Pew Charitable Trusts, Pew Research Center, public service

Ribbons, ribbons, everywhere

April 28, 2013 By Susannah Fox Leave a Comment

Ribbon shape on wall

Peggy Orenstein‘s article, “Our Feel-Good War on Breast Cancer,” is worth one of your precious NYTimes.com chits (unless, of course, you’re a subscriber, in which case you have hopefully already devoured it). But don’t just take my word for it, read this post by Katherine O’Brien of the Metastatic Breast Cancer Network — the bloggers […]

Filed Under: policy issues, research issues Tagged With: breast cancer, cancer, New York Times, Peggy Orenstein

Must-read: Adding up diagnosis errors

April 23, 2013 By Susannah Fox 20 Comments

Laura Landro’s column in the Wall Street Journal today is a must-read: Adding Up Diagnosis Errors. Why? Let me count the ways: She is one of the most thorough, informed health care reporters around. She is covering an important topic that should be of interest to everyone. The study is behind a paywall so media coverage […]

Filed Under: key people, research issues Tagged With: Bmj, Diagnosis, jama, Laura Landro

A mirror and a window

February 19, 2013 By Susannah Fox 9 Comments

Airplane window view of a city by A30_Tsitika

I’ve been thinking about the role of the Pew Research Center* in the world, particularly in regard to how we communicate and disseminate our work. Here is my idea: We are both a mirror and a window. We hold up a mirror to society, reflecting back the current state of all sorts of things, like marriage, […]

Filed Under: participatory research, peer-to-peer health care, research issues, social media Tagged With: participatory research, Pew Internet, Pew Research Center

2012 Health Survey Data

February 11, 2013 By Susannah Fox Leave a Comment

Calculator by josef stuefer on Flickr

Thanks to multiple requests, and our hope to be useful and responsive to our audience, the Pew Research Center posted a preliminary version of the September 2012 health survey data. Please note that this version includes the topline, questionnaire, CSV file, and SPSS file. Here’s an explanation of our data resources if you have questions about […]

Filed Under: research issues Tagged With: california healthcare foundation, Pew Internet, Pew Research Center

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Recent Comments

  • Susannah Fox on Patient Input on Clinical Trials: “Great question, thank you! My impression is that our best bet is to make it appeal to study sponsors as…” Oct 17, 10:26
  • Dave deBronkart on Patient Input on Clinical Trials: “I don’t have anything to add but I have a suggestion for the problem that trialists don’t *know* about the…” Oct 16, 14:01
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