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Susannah Fox

I help people navigate health and technology.

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policy issues

For some people, it’s still 1994

December 8, 2011 By Susannah Fox 18 Comments

Here’s a question which inspired me today, received via email from Christie Silbajoris,  director of NC Health Info: My library is rethinking its provision of services to the public.  We’ve got a history of going beyond what the average academic health sciences library provides in this area but in this age of budget cuts (and […]

Filed Under: general, hc's problem list, policy issues, public Q&A, shared decision making

World AIDS Day

December 1, 2011 By Susannah Fox 3 Comments

Mark Senak’s post, “World AIDS Day: The Past Cannot Be the Future,” inspired me to write an epic comment about different perspectives on illness and care delivery, so I adapted and expanded it to share here: I recently read Susan Sontag‘s two essays, “Illness as Metaphor” (about TB & cancer, published in 1977) and “AIDS […]

Filed Under: ethics, policy issues

Are patients knights, knaves, or pawns?

July 15, 2011 By Susannah Fox 35 Comments

Sachin Jain and John Rother’s JAMA commentary, “Are Patients Knights, Knaves, or Pawns?” is an article that begs to be shared.  The first time I read it I had to stand up, I was so excited — how can I design a survey to capture these questions?! was my first thought. My second thought was […]

Filed Under: policy issues, reforming hc, trends & principles Tagged With: altruism, Institute Of Medicine, jama, Patient Centered Care, Pew Internet

What if information spread more quickly than a virus?

March 24, 2011 By Susannah Fox 10 Comments

On March 11, the White House hosted an event to mark National Women and Girls HIV/AIDS Awareness Day. The event was livestreamed from whitehouse.gov and is archived on YouTube: I have written before about the unique nature of conferences concerning sexually-transmitted infections, but I didn’t expect to hear the same frank talk at a White […]

Filed Under: policy issues, positive patterns Tagged With: HIV/AIDS, Pew Internet, STIs, White House

Making Strides Toward Improving Health Literacy Online–Susannah Fox

March 10, 2011 By Susannah Fox 8 Comments

This is a guest post by Jessica Mark, healthfinder.gov and Outreach Program Manager, Health Communication and eHealth Team in the Office of Disease Prevention and Health Promotion at the U.S. Department of Health and Human Services We all struggle with complex health information. In fact, as many as 9 out of 10 adults experience limited […]

Filed Under: hc's problem list, policy issues, research issues

What people living with disability can teach us

January 26, 2011 By Susannah Fox 10 Comments

The Pew Internet Project recently issued a short report noting that people living with disability are less likely than other adults in the U.S. to use the internet: 54%, compared with 81%. The first question many people ask when they hear that is, Why? The second is, What can be done? The third is, or […]

Filed Under: medical records, policy issues Tagged With: connected health, digital divide, disability, HCI, HIT, human-computer interaction, mobile, Pew Internet, PHR, usability

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Recent Comments

  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33
  • Samantha Bridge on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Great conversation. It has been my experience as a nurse to have the conversation before the testing. What is the…” May 4, 09:05
  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12

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