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Susannah Fox

I help people navigate health and technology.

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health data

Wow! How? Obesity Treatment

June 28, 2024 By Susannah Fox Leave a Comment

Cartoon of 4 people exercising, holding a laptop, or holding a book

This post is part of my LinkedIn series: Wow! How? Health. Four in ten U.S. adults have obesity, according to the National Center for Health Statistics. That includes 9% of U.S. adults with severe obesity, which is defined as having a body mass index over 40. Shame and stigma compound their health problems. “You wear […]

Filed Under: Champions, health data, Networkers, peer-to-peer health care, Seekers, Solvers Tagged With: diet, Elina Onitskansky, Ilant Health, obesity, Rebel Health, Wow! How? Health

Wow! How? Patient Data Rights

February 8, 2024 By Susannah Fox 2 Comments

Wow! How? Health

Until relatively recently, people living with diabetes were shut out of conversations about improving the devices that keep them alive. Device manufacturers saw clinicians as their customers, not patients, and nobody was asking them to change that stance, including the FDA.  Patients and their loved ones were grateful to have insulin pumps and continuous glucose […]

Filed Under: health data, key people, Networkers, policy issues, Solvers Tagged With: American Diabetes Association, Anna McCollister, Dexcom, diabetes, Fda, Howard Look, MIT Press, Networkers, Rebel Health, Solvers, Tidepool, Wow! How? Health

Public Q&A: Rare Disease and Rebel Health

January 19, 2024 By Susannah Fox Leave a Comment

Rebel Health: A field guide to the patient-led revolution in medical care

The Global Genes RARE Advocacy Summit in September 2023 provided a forum for me to talk, for the first time, about my upcoming book and how rare disease communities have been a key part of my professional life. Here’s a set of questions that Sravanthi Meka of Global Genes asked me in advance of the meeting: […]

Filed Under: Champions, health data, Networkers, peer-to-peer health care, public Q&A, Seekers, Solvers Tagged With: Global Genes, Hhs, Long Covid, MIT Press, Rare Disease, Rebel Health

Too legit to quit

April 18, 2022 By Susannah Fox 17 Comments

Sunflowers with a bee

Sara Riggare, PhD, an expert in patient-led research and personal science, tweeted this animated GIF depicting the common process in starting personal science, which is based on Anne Wright’s work: Andrea Downing was among those who replied, writing: “My feedback: We’ve been saying for years what you outline here. The question is: how do we […]

Filed Under: health data, key people, peer-to-peer health care, research issues Tagged With: Andrea Downing, Anne Wright, Dana Lewis, Gary Wolf, Long Covid, personal science, Quantified Self, Sara Riggare, Unrest

Consumer-strength tools,
industrial-strength innovation

August 10, 2021 By Susannah Fox Leave a Comment

Group of people in front of huge screen of numbers

On August 31, I’ll be part of the 2021 Federal Wearables Summit. This post is my attempt to “flip” the event by sharing what I intend to say. Please let me know what you think in the comments below. In 1986, Eric von Hippel of MIT identified “lead users” as people who identify and solve […]

Filed Under: Champions, health data, Networkers, patient networks, peer-to-peer health care, policy issues, Solvers Tagged With: Body Politic, Cajun Navy, Eric von Hippel, Fiona Lowenstein, LongCovid, MIT Press, Patient-Led Research Collaborative, Rock Health, self-tracking, wearables

Doing the work

July 9, 2021 By Susannah Fox 19 Comments

Close-up photo of a green leaf

I am thrilled to share that I am writing a book for MIT Press about the alchemy, grit, and soul of the health innovation pipeline that is powered by people connecting with each other to solve problems. Here’s the back story, which illustrates one of my core principles: Do the work that needs to get […]

Filed Under: health data, patient networks, peer-to-peer health care Tagged With: Bob Prior, Body Politic, Emily Sirotich, Gary Wolf, Gina Assaf, Hannah Davis, Helen Burstin, Jennifer Brea, Kate Lorig, LongCovid, MIT Press, Tanya Basu

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