• Skip to primary navigation
  • Skip to main content
  • Skip to footer

Susannah Fox

I help people navigate health and technology.

  • Home
  • Rebel Health
  • Blog
    • greatest hits
    • health data
    • peer-to-peer health care
    • public Q&A
  • About me
    • Bio
    • Now
    • Curriculum vitae
  • Events

e-pts resources

Public Q&A: How to support an introvert in an increasingly connected world?

November 13, 2014 By Susannah Fox 31 Comments

All signs point to a social revolution in health. As I’ve put it, the internet gives us access not only to information, but also to each other. Crucial advice can come from a just-in-time someone-like-you as well as from a clinician. So what happens to people who are shy or introverted? If sharing and learning […]

Filed Under: e-pts resources, end of life, patient networks, peer-to-peer health care, public Q&A

Evolution of online patient communities

February 1, 2014 By Susannah Fox 28 Comments

A conversation broke out on Twitter this morning about the evolution of online patient communities — how some people prefer to stick with older, familiar, “it just works” technologies rather than try to migrate to a new platform. Catch up by reading this Storify. I’d love to work on this with the health geek tribe […]

Filed Under: e-pts resources, patient networks Tagged With: Facebook, Smart Patients

Engage With Grace

November 27, 2013 By Susannah Fox 1 Comment

This Thanksgiving, I am hosting the guest post below, participating in the annual Engage With Grace blog rally, to encourage those who haven’t considered their end-of-life preferences start thinking about them, and asking those who have done it to consider how their decisions may have changed over time. It’s good food for thought. Wishing you […]

Filed Under: e-pts resources, end of life Tagged With: Engage with Grace

“Googling is a sign of patient engagement”

May 3, 2013 By Susannah Fox 10 Comments

Let Patients Help book cover

Wrap your head around that idea. It’s one of the many insights I learned from reading Let Patients Help — and I’m freaking quoted in that chapter! But that’s E-patient Dave, seeing things that nobody else sees and, in this case, making up words like “boogloo” (Bing + Google + Yahoo). As he writes: 81% […]

Filed Under: e-pts resources, key people, net-friendly docs Tagged With: Danny Sands, E-Patient Dave, Let Patients Help

Visualize This: An e-Patient’s Medical Life History

March 18, 2012 By Susannah Fox 10 Comments

The following was originally Katie McCurdy’s response to the excellent, ongoing discussion about the future for self-tracking. It’s too good not to elevate to a post of its own — Susannah. ____________________________________________________________________________  Katie’s self-crafted medical timeline (Click to enlarge; see story below) There is some recent thought that self-tracking or data gathering is “a manifestation of […]

Filed Under: e-patient stories, e-pts resources, featured commenters Tagged With: Katie McCurdy

The Power of Rare Disease Patients

February 25, 2012 By Susannah Fox 2 Comments

I’m honored to post this essay by Wendy White, Founder & President of Siren Interactive: Thanks to the Pew Internet Project, we have a lot of data about ePatients. These empowered, engaged and educated patients (and families) are helping to bring about a transformation of healthcare in this country. Pew’s Susannah Fox has named them […]

Filed Under: e-pts resources

  • Go to page 1
  • Go to page 2
  • Go to Next Page »

Footer

Explore

Don't miss a post

Enter your email address and receive notifications of new posts by email.

Topics

  • Seekers
  • Networkers
  • Solvers
  • Champions
  • Health Data
  • Peer-to-Peer Health Care
  • Public Q&A

Recent Comments

  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33
  • Samantha Bridge on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Great conversation. It has been my experience as a nurse to have the conversation before the testing. What is the…” May 4, 09:05
  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12

Copyright Susannah Fox © 2025 · WordPress · Log in