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Susannah Fox

I help people navigate health and technology.

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Susannah Fox

Twitter, Facebook, and e-patients–Susannah Fox

February 13, 2009 By Susannah Fox 10 Comments

Here is a key line from the Pew Internet Project’s report on Twitter and status updating: Twitter users engage with news and own technology at the same rates as other internet users, but the ways in which they use the technology—to communicate, gather and share information—reveals their affinity for mobile, untethered and social opportunities for […]

Filed Under: trends & principles Tagged With: Facebook, Twitter

Raise Awareness of the Reality of Rare Disorders–Susannah Fox

February 4, 2009 By Susannah Fox 15 Comments

Wendy White, Founder and President of Siren Interactive, contributes this essay: One in ten Americans is living with a rare disorder, but they are often overlooked in the media, in research circles, and in their local communities. The 2nd Annual Rare Disease Day on Feb. 28, 2009, is an opportunity to change that.

Filed Under: patient networks Tagged With: NORD, rare diseases

“Patients” vs. “Health Care Consumers”? Both, If You Ask AmyT–Susannah Fox

February 2, 2009 By Susannah Fox 4 Comments

Amy Tenderich weighs in on the name debate: patient vs. consumer. Almost anything is better than cyberchondriac or medical googler, but e-patient is still my favorite.

Filed Under: found on the net Tagged With: diabetes, diabetesmine, e-patients

Health Care Law Slides–Susannah Fox

January 15, 2009 By Susannah Fox Leave a Comment

Bob Coffield’s slide set, Consumer Driven Health Care: The Impact of Social Media and Health 2.0, is a lawyer’s eye view of the current market. Plus he included a couple neat Wordles.

Filed Under: found on the net Tagged With: consumer driven, health 2.0, law, PowerPoint

Teens, Sex and Technology

January 9, 2009 By Susannah Fox 1 Comment

Our own John Grohol has an interesting article up on PsychCentral about teens, sex, technology, and the online disinhibition effect (comments are also open on Well). For us: Does online disinhibition play a role in everyone’s use of online health resources?

Filed Under: found on the net

Doing Our Best to Blow Your Minds (Emerging Trends in Chronic Disease Care)

January 8, 2009 By Susannah Fox 6 Comments

Here is my third post in a series of look-backs at the November 2008 Chronic Disease Care conference in San Francisco. (OK, yes, it’s now January 2009 — I’m savoring the experience, not Twittering it!) The first post was about spreading improvement beyond early adopters, the second was devoted to patient voices, and this will […]

Filed Under: key people, net-friendly docs, patient networks, positive patterns Tagged With: diabetesmine, hellohealth, participatory medicine, patientslikeme

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Recent Comments

  • Susannah Fox on Lessons learned about hospice care: “Thank you for sharing!” Jul 30, 12:46
  • Samitivej Hospital on How I choose which conferences to attend: “Such a thoughtful framework! I especially relate to how much the organizer and audience shape the whole experience. For me,…” Jul 28, 07:42
  • DEANFoundation on Lessons learned about hospice care: “This deeply honest blog sheds light on the hidden challenges caregivers face during hospice care The DEAN Foundation in India…” Jul 21, 09:07

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