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Susannah Fox

I help people navigate health and technology.

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Susannah Fox

Senator Ted Kennedy was an e-patient–Susannah Fox

August 27, 2009 By Susannah Fox 2 Comments

CNN’s Elizabeth Cohen makes a compelling case in her column today: How to get Kennedy-esque health care on your budget. Anyone with internet access can gather the information they need to make better health decisions, as e-Patient Dave and Karen Parles did, and refuse to take “no” for an answer, as Sen. Kennedy did.

Filed Under: key people, news & gossip, patient networks, trends & principles Tagged With: Anyone With Internet Access, Better Health, Budget, Cnn, Elizabeth Cohen, Esque, health care, Health Decisions, Senator Kennedy, Senator Ted Kennedy, Ted Kennedy, white paper

Age of Participatory Medicine–Susannah Fox

August 20, 2009 By Susannah Fox Leave a Comment

Kevin Kruse posted a video yesterday which includes this line:  The age of participatory medicine has begun. It’s a promo for e-Patients Connections 2009, a conference to be held in Philadelphia this October, but also has good citations (ahem, including my reports).  See what you think.

Filed Under: found on the net Tagged With: Citations, Kevin Kruse, Medicine, Participatory, Philadelphia

Social Media’s Promise for Public Health

August 18, 2009 By Susannah Fox 39 Comments

Federal agencies can, and should, be the first responders to health questions. Social media can help. That’s my summary of presentations from last week’s National Conference on Health Communication, Marketing and Media conference, where I had the sense, once again, of a tribal meeting, but this one had the urgency of war council. The enemy […]

Filed Under: policy issues, positive patterns Tagged With: Air Demo, Alignright, Communication Marketing, connected health, Distributive Networks, Edge Of My Seat, Flickr, Flu Virus, Health Advocates, Health Communication, Health Marketing, Health Questions, Media Campaigns, Mexican Government, Myspace, Nall, patientslikeme, pew internet project, Public Health Campaigns, Salmonella Typhimurium, Second Life, Swine Flu, Tweets, Twitter, War Council, Yellowbrickroad

Shared Kismet: Wikipedia and the NIH

July 16, 2009 By Susannah Fox 14 Comments

The National Institutes of Health hosted a Wikipedia Academy today to train scientists, communications staff, and other NIH staffers in how to contribute to what has become a top source for health information in the U.S. (For more details, please see the NIH press release, a Wikipedia project page, and a Wikimedia Blog post.) The […]

Filed Under: positive patterns Tagged With: National Institutes Of Health, NIH, Twitter, Wikimedia Foundation, Wikipedia

E-patients in U.S. News–Susannah Fox

July 14, 2009 By Susannah Fox Leave a Comment

U.S. News & World Report’s Best Hospitals guide features 3 articles of particular interest to e-patients: Getting Medical Advice on the Web from Other Patients Would You Share Your Health Information Online? Great Medicine Needs Committed Patients

Filed Under: found on the net Tagged With: Best Hospitals, health information, Medical Advice On The Web, U S News

Participatory Medicine at PdF09: Can we get a do-over?

July 8, 2009 By Susannah Fox 12 Comments

Detail of a painting by Regina Holliday shows a hand holding a smartphone with the PatientsLikeMe symbol

The poli-tech tribe gathered in New York last week for the Personal Democracy Forum and, as Craig Newmark put it, welcomed “our new nerd overlords.” Esther Dyson, Jamie Heywood, Rep. Jerry Nadler (D-NY), and I were asked to take on a breakout panel entitled, “From Participatory Politics to Participatory Medicine: The Coming Revolution in Health […]

Filed Under: reforming hc, trends & principles Tagged With: Chris Schroeder, Craig Newmark, Disaggregation, Esther Dyson, Health Care Policy, Health Care Reform, Health Data Rights, Healthcentral, Jamie Heywood, Jerry Nadler, Openness, participatory medicine, Patient Data, patientslikeme, Personal Democracy Forum, pew internet project, susannah fox, Ted Eytan, Transparency

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  • Susannah Fox on Jean Nidetch, Rebel Health leader: “Yes! I have enjoyed learning more about her personal story, which is a parable of midcentury feminism. WW was a…” May 9, 10:10
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