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Susannah Fox

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Susannah Fox

HIPAA’s Broken Promise

September 14, 2009 By Susannah Fox 6 Comments

Large house built directly on sand, now collapsing

If you hate HIPAA, it’s your lucky day. Paul Ohm is handing you ammunition in his article, “Broken Promises of Privacy: Responding to the Surprising Failure of Anonymization.” His argument: our current information privacy structure is a house built on sand. “Computer scientists…have demonstrated they can often ‘reidentify’ or ‘deanonymize’ individuals hidden in anonymized data […]

Filed Under: health data, policy issues Tagged With: Anonymization, Computer Scientists, data, Fellow Patients, Fig Leaf, Free Flow, Glass Houses, Health Data, Health Information Technology, Health Professionals, Hipaa, Information Privacy, Medical Researchers, Medical Secrets, Ohm, Paul Ohm, Privacy Problem, Unicorns

Senator Ted Kennedy was an e-patient–Susannah Fox

August 27, 2009 By Susannah Fox 2 Comments

CNN’s Elizabeth Cohen makes a compelling case in her column today: How to get Kennedy-esque health care on your budget. Anyone with internet access can gather the information they need to make better health decisions, as e-Patient Dave and Karen Parles did, and refuse to take “no” for an answer, as Sen. Kennedy did.

Filed Under: key people, news & gossip, patient networks, trends & principles Tagged With: Anyone With Internet Access, Better Health, Budget, Cnn, Elizabeth Cohen, Esque, health care, Health Decisions, Senator Kennedy, Senator Ted Kennedy, Ted Kennedy, white paper

Age of Participatory Medicine–Susannah Fox

August 20, 2009 By Susannah Fox Leave a Comment

Kevin Kruse posted a video yesterday which includes this line:  The age of participatory medicine has begun. It’s a promo for e-Patients Connections 2009, a conference to be held in Philadelphia this October, but also has good citations (ahem, including my reports).  See what you think.

Filed Under: found on the net Tagged With: Citations, Kevin Kruse, Medicine, Participatory, Philadelphia

Social Media’s Promise for Public Health

August 18, 2009 By Susannah Fox 39 Comments

Federal agencies can, and should, be the first responders to health questions. Social media can help. That’s my summary of presentations from last week’s National Conference on Health Communication, Marketing and Media conference, where I had the sense, once again, of a tribal meeting, but this one had the urgency of war council. The enemy […]

Filed Under: policy issues, positive patterns Tagged With: Air Demo, Alignright, Communication Marketing, connected health, Distributive Networks, Edge Of My Seat, Flickr, Flu Virus, Health Advocates, Health Communication, Health Marketing, Health Questions, Media Campaigns, Mexican Government, Myspace, Nall, patientslikeme, pew internet project, Public Health Campaigns, Salmonella Typhimurium, Second Life, Swine Flu, Tweets, Twitter, War Council, Yellowbrickroad

Shared Kismet: Wikipedia and the NIH

July 16, 2009 By Susannah Fox 14 Comments

The National Institutes of Health hosted a Wikipedia Academy today to train scientists, communications staff, and other NIH staffers in how to contribute to what has become a top source for health information in the U.S. (For more details, please see the NIH press release, a Wikipedia project page, and a Wikimedia Blog post.) The […]

Filed Under: positive patterns Tagged With: National Institutes Of Health, NIH, Twitter, Wikimedia Foundation, Wikipedia

E-patients in U.S. News–Susannah Fox

July 14, 2009 By Susannah Fox Leave a Comment

U.S. News & World Report’s Best Hospitals guide features 3 articles of particular interest to e-patients: Getting Medical Advice on the Web from Other Patients Would You Share Your Health Information Online? Great Medicine Needs Committed Patients

Filed Under: found on the net Tagged With: Best Hospitals, health information, Medical Advice On The Web, U S News

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