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Susannah Fox

I help people navigate health and technology.

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Susannah Fox

Peer-to-peer Healthcare at the White House–Susannah Fox

March 10, 2011 By Susannah Fox 6 Comments

It’s hard to say this without sounding like I’m bragging, but that’s not going to stop me: I’m going to the White House tomorrow to talk about Pew Internet Project’s latest research on peer-to-peer healthcare.

Filed Under: patient networks

Making Strides Toward Improving Health Literacy Online–Susannah Fox

March 10, 2011 By Susannah Fox 8 Comments

This is a guest post by Jessica Mark, healthfinder.gov and Outreach Program Manager, Health Communication and eHealth Team in the Office of Disease Prevention and Health Promotion at the U.S. Department of Health and Human Services We all struggle with complex health information. In fact, as many as 9 out of 10 adults experience limited […]

Filed Under: hc's problem list, policy issues, research issues

Healthcare Out Loud

February 25, 2011 By Susannah Fox 44 Comments

Last fall, at the e-Patient Connections conference, I gave a sneak preview of some survey results which are set to be have been released on the Pew Internet site on Monday, Feb. 28. I hoped to spark new ideas for a savvy, plugged-in audience and I ended up surprising even myself with some of what […]

Filed Under: patient networks Tagged With: #epatcon, ACOR, braintalk, E-Patient Dave, Healthcentral, patientslikeme, Patti Brennan, Pew Internet, Regina Holliday, Tom Ferguson

A Health Information Divide

February 1, 2011 By Susannah Fox 19 Comments

This post is first and foremost a thank-you note. Thank you to everyone who posted a comment, emailed me, or tweeted a suggestion in response to my request for input last July: Crowdsourcing a Survey. Six new topics came directly from those conversations. Thank you to Veenu Aulakh and the California HealthCare Foundation who provided […]

Filed Under: demographics Tagged With: california healthcare foundation, caregivers, digital divide, Maternity Care, Older Adults, Pew Internet

What people living with disability can teach us

January 26, 2011 By Susannah Fox 10 Comments

The Pew Internet Project recently issued a short report noting that people living with disability are less likely than other adults in the U.S. to use the internet: 54%, compared with 81%. The first question many people ask when they hear that is, Why? The second is, What can be done? The third is, or […]

Filed Under: medical records, policy issues Tagged With: connected health, digital divide, disability, HCI, HIT, human-computer interaction, mobile, Pew Internet, PHR, usability

“They never took his sock off”: a parable of patient empowerment, resourcefulness, and literacy–Susannah Fox

December 28, 2010 By Susannah Fox 26 Comments

Jessie Gruman’s Journal of Participatory Medicine commentary, “Evidence That Engagement Does Make a Difference,” reminded me of a talk delivered by Alice Tolbert Coombs, M.D.,  last September: As you listen to Dr. Coombs’s chilling story about a man who lost his foot because nobody ever took his sock off to examine it, please review Jessie’s […]

Filed Under: shared decision making, Why PM Tagged With: Alice Tolbert Coombs, Jessie Gruman, Journal of Participatory Medicine, Mayo Transform, participatory medicine, patientslikeme, Paul Wicks, Pew Internet

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Recent Comments

  • Susannah Fox on Lessons learned about hospice care: “Zoe, thank you for the unvarnished comment! We need to go into end of life with our eyes open in…” Aug 5, 14:20
  • Zoe on Lessons learned about hospice care: “I despise home hospice and the entire industry can kiss my ass. I was duped into caring for my dying…” Aug 5, 03:45
  • Susannah Fox on Lessons learned about hospice care: “Thank you for sharing!” Jul 30, 12:46

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