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Susannah Fox

I help people navigate health and technology.

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Susannah Fox

The Web at 25

February 27, 2014 By Susannah Fox 16 Comments

My latest assignment at the Pew Research Center had nothing to do with health and health care, but everything to do with my personal history as an internet geologist. Here’s the report: The Web at 25 in the U.S. It was incredibly fun to spelunk in our survey archives, digging up the first national measures […]

Filed Under: internet geology

Hacking home health care

February 10, 2014 By Susannah Fox 57 Comments

King Arthur large baker's peel

We need to fix the “solved problems” crisis in home health care. Let me explain. At the start of Health Foo* in December, everyone introduced themselves in 6 words or less. Row by row, person by person, 100+ people talked in turn. In the back row, nearly the last to speak, Laura Baldwin stood and […]

Filed Under: end of life, key people, peer-to-peer health care Tagged With: #InventHealth, Alzheimers, caregivers, Health Foo, home health care hacks, Invent Health, Moebius Syndrome

Put down the clipboard and listen

February 7, 2014 By Susannah Fox 7 Comments

Regina Holliday Data Mote

Here are the remarks I prepared for the Feb. 6, 2014, Engage & Empower Me class at Stanford Medical School. It’s a long post, so if you’d prefer to zone out, you can watch the video. In thinking about this class, I thought a good framing question for tonight is: How does change happen? How […]

Filed Under: e-patient stories, net-friendly docs, participatory research, research issues, social media Tagged With: Pete Seeger, Regina Holliday, Stanford Medicine X, The Walking Gallery, Tom Ferguson

Stanford Medicine X: Participatory research

February 7, 2014 By Susannah Fox 3 Comments

Brett Alder and I spoke last night at Stanford Medical School’s Engage & Empower Me class: Today is a travel day for me, back to the East Coast, so any comments posted may wait in the queue — but please let me know what you think! I’ll post more about this event when I’m home, […]

Filed Under: e-patient stories, net-friendly docs, participatory research, research issues, social media Tagged With: Stanford Medicine X

Evolution of online patient communities

February 1, 2014 By Susannah Fox 28 Comments

A conversation broke out on Twitter this morning about the evolution of online patient communities — how some people prefer to stick with older, familiar, “it just works” technologies rather than try to migrate to a new platform. Catch up by reading this Storify. I’d love to work on this with the health geek tribe […]

Filed Under: e-pts resources, patient networks Tagged With: Facebook, Smart Patients

On Purpose

January 29, 2014 By Susannah Fox 24 Comments

A stylized dung beetle from On Purpose

Research shows that if you can connect to a higher purpose, you will be more likely to reach your health goals. For example, the most effective treatment for hepatitis C is interferon, a drug that requires self-injection and has some very nasty side effects, like fatigue, anxiety, nausea, and skin rashes. It is very difficult […]

Filed Under: key people, social media Tagged With: adherence, David Sifry, Hepatitis C, Lisa Gualtieri, On Purpose, Pamela Ressler, Vic Strecher

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Recent Comments

  • Susannah Fox on Lessons learned about hospice care: “Thank you for sharing!” Jul 30, 12:46
  • Samitivej Hospital on How I choose which conferences to attend: “Such a thoughtful framework! I especially relate to how much the organizer and audience shape the whole experience. For me,…” Jul 28, 07:42
  • DEANFoundation on Lessons learned about hospice care: “This deeply honest blog sheds light on the hidden challenges caregivers face during hospice care The DEAN Foundation in India…” Jul 21, 09:07

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