Laura Landro’s column in the Wall Street Journal features a series of profiles of online patient groups like MPDinfo.org and ACOR.org, among others. Now seems like the right time to post some data that I’ve been holding back, waiting for the right opportunity to talk about it publicly.
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Wikipedia as an e-patient source–Susannah Fox
Read this quote and think about which industry is being admonished: “We cannot, however, continue to reject Wikipedia because we aren’t comfortable with the wiki process itself… To be quite frank, continually bad-mouthing Wikipedia to the very people who use it—successfully—makes us look a bit daft. It would be much more productive to teach [people] […]
Health Search–Susannah Fox
Bill Tancer is the general manager of global research at Hitwise and writes a column for Time.com called “Science of Search.” His recent column on “Restless Leg, Mumps and Other Maladies” addressed the effect of media attention to certain conditions & diseases. The column is a neat summary of a pattern we had noticed: The […]
My Idea of Great: Health Data Geeks Convention–Susannah Fox
I was lucky enough to be invited to a “Data Users Conference” sponsored by the Health Information National Trends Survey/National Cancer Institute, which really should have been called Health Data Geeks Unite! If you have a moment, I highly recommend browsing through some of the presentations, particularly the following: David Stinchcomb showed how isopleth maps […]
Personal Health Records–Susannah Fox
Since keeping track of your own health records is part of the e-patient responsibilities described by Charlie Smith in today’s post, I thought I’d point out a study sent to me by Lorenzo Moreno, an analyst at Mathematica Policy Research. His team conducted 3 focus groups with people living in medically underserved sections of New […]
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