Wendy White, Founder and President of Siren Interactive, contributes this essay: One in ten Americans is living with a rare disorder, but they are often overlooked in the media, in research circles, and in their local communities. The 2nd Annual Rare Disease Day on Feb. 28, 2009, is an opportunity to change that.
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“Patients” vs. “Health Care Consumers”? Both, If You Ask AmyT–Susannah Fox
Amy Tenderich weighs in on the name debate: patient vs. consumer. Almost anything is better than cyberchondriac or medical googler, but e-patient is still my favorite.
Health Care Law Slides–Susannah Fox
Bob Coffield’s slide set, Consumer Driven Health Care: The Impact of Social Media and Health 2.0, is a lawyer’s eye view of the current market. Plus he included a couple neat Wordles.
Teens, Sex and Technology
Our own John Grohol has an interesting article up on PsychCentral about teens, sex, technology, and the online disinhibition effect (comments are also open on Well). For us: Does online disinhibition play a role in everyone’s use of online health resources?
Doing Our Best to Blow Your Minds (Emerging Trends in Chronic Disease Care)
Here is my third post in a series of look-backs at the November 2008 Chronic Disease Care conference in San Francisco. (OK, yes, it’s now January 2009 — I’m savoring the experience, not Twittering it!) The first post was about spreading improvement beyond early adopters, the second was devoted to patient voices, and this will […]
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