Today is Rare Disease Day 2009. Join us in recognizing the reality of rare disorders and celebrating the beauty in the eyes of children living with rare disease and those who have lost their lives.
Blog
Why Technology is No Longer Optional in Public Health–Susannah Fox
Andre Blackman has posted an important essay about mobile tech’s potential in health care — and the imperative to not miss this cluetrain.
Ted Eytan’s Twitterview–Susannah Fox
“Ask your patients what they use, what they want to use, and how you can be there for them.” — Ted Eytan‘s advice to IT-reluctant health professionals in a Twitterview with Diario Médico.
Twitter, Facebook, and e-patients–Susannah Fox
Here is a key line from the Pew Internet Project’s report on Twitter and status updating: Twitter users engage with news and own technology at the same rates as other internet users, but the ways in which they use the technology—to communicate, gather and share information—reveals their affinity for mobile, untethered and social opportunities for […]
Raise Awareness of the Reality of Rare Disorders–Susannah Fox
Wendy White, Founder and President of Siren Interactive, contributes this essay: One in ten Americans is living with a rare disorder, but they are often overlooked in the media, in research circles, and in their local communities. The 2nd Annual Rare Disease Day on Feb. 28, 2009, is an opportunity to change that.
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