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Susannah Fox

I help people navigate health and technology.

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“They never took his sock off”: a parable of patient empowerment, resourcefulness, and literacy–Susannah Fox

December 28, 2010 By Susannah Fox 26 Comments

Jessie Gruman’s Journal of Participatory Medicine commentary, “Evidence That Engagement Does Make a Difference,” reminded me of a talk delivered by Alice Tolbert Coombs, M.D.,  last September: As you listen to Dr. Coombs’s chilling story about a man who lost his foot because nobody ever took his sock off to examine it, please review Jessie’s […]

Filed Under: shared decision making, Why PM Tagged With: Alice Tolbert Coombs, Jessie Gruman, Journal of Participatory Medicine, Mayo Transform, participatory medicine, patientslikeme, Paul Wicks, Pew Internet

Cancer 2.0

December 13, 2010 By Susannah Fox 9 Comments

President's Cancer Panel Agenda for a meeting December 14 2010

Given the evidence that people are ready, willing, and able to engage in online discussions about cancer prevention and treatment, what steps are being taken to ensure that the U.S. (and the world) does not miss this latest opportunity for education and discovery? The Pew Internet Project‘s latest report on health and health care, Cancer […]

Filed Under: patient networks, trends & principles Tagged With: cancer, Pew Internet

Going Viral Against HIV and STIs

December 10, 2010 By Susannah Fox 5 Comments

The New York State Department of Health AIDS Institute, in partnership with AIDS.gov, held a one-day forum on social media, HIV, and sexually transmitted infections (STI) that turned out to be an unfiltered discussion of love, truth, and technology. Why was it so smoking hot? And is this unique to conferences (or panels) about sexual […]

Filed Under: positive patterns Tagged With: AIDS.gov, cdc, GMHC, Harm Reduction Coalition, Hiv, HIV CIE, Kicesie Drew, Lee Aase, LoveHeals, Mayo Clinic, New York State, Pew Internet, Qpid.me, sexual health, STIs, susannah fox

President’s Cancer Panel: Input, Please–Susannah Fox

November 30, 2010 By Susannah Fox 36 Comments

What evidence would you bring to convince cancer researchers and policy makers to pay attention to how the internet is changing health and health care? That’s my challenge for the Dec. 14 meeting of the President’s Cancer Panel, “The Future of Cancer Research: Accelerating Scientific Innovation” (PDF of the agenda).

Filed Under: policy issues, pts as teachers, research issues Tagged With: ACOR, Andrew Schorr, Bill Claxton, cancer, Center For Studying Health System Change, Chordoma, Erin McCartney, hints, Institute Of Medicine, national cancer institute, Palo Alto Medical Foundation, patientslikeme, Pew Internet

Engage With Grace Over Thanksgiving

November 24, 2010 By Susannah Fox 19 Comments

Can you and your loved ones answer 5 questions about the end of life?  Alex Drane, founder of Engage With Grace, explains why Thanksgiving is a good time to talk about these issues: If you have thoughts to share about Engage With Grace, end-of-life decisions, or related issues, please do so in the comments. Happy […]

Filed Under: general Tagged With: Alexandra Drane, Cnn, Engage with Grace

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  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07
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