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Susannah Fox

I help people navigate health and technology.

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Wow! How? Health

Wow! How? Learning Health Networks

June 13, 2024 By Susannah Fox 1 Comment

Wow! How? Health

In 2007, pediatric gastroenterologists began tracking and sharing best practices as they cared for kids with Crohn’s disease and ulcerative colitis. Their “all teach, all learn” philosophy invited patients and families to participate as key members of the care innovation teams. The results have been astonishing: 82% of patients in the ImproveCareNow network of 100+ […]

Filed Under: Networkers, Seekers, Solvers Tagged With: ImproveCareNow, learning health system, Rebel Health, ulcerative colitis, Wow! How? Health

Wow! How? For Love & Life

June 4, 2024 By Susannah Fox Leave a Comment

Movie poster: For Love and Life: No Ordinary Campaign. Amazon Prime May 28. Two people embrace, smiling, looking up.

This essay is part of my LinkedIn newsletter series: Wow! How? Health. Brian Wallach and Sandra Abrevaya brought their second daughter home on the same day that he received a devastating diagnosis: amyotrophic lateral sclerosis (ALS). Brian was told he had six months to live. Seven years later, Brian is still alive. He and Sandra […]

Filed Under: Champions, Networkers Tagged With: ALS, Amy Tenderich, Anthony Carbajal, Brian Wallach, Casey Quinlan, diabetesmine, Elizabeth Jameson, Gilles Frydman, I AM ALS, Jamie Heywood, Katie McCurdy, Maggie Whittum, Michael Graves, Pictal Health, Rebel Health, Sandra Abrevaya, Stephen Heywood, Synapticure, Wow! How? Health, Yoko Sen

Wow! How? Mystery vs. Moms

May 24, 2024 By Susannah Fox 3 Comments

Wow! How? Health

When her daughter, Sara, transformed from an active teen to a nearly catatonic shell of a person, Eileen Quinn knew she had to take action. Unfortunately, since Sara lives with Down syndrome her symptoms were likely to be dismissed as sad but inevitable. But Quinn had a hunch that her daughter’s rapid decline was not […]

Filed Under: Champions, Networkers, Seekers Tagged With: Down syndrome, Eileen Quinn, Jonathan Santoro, Rebel Health, Richard Sima, Washington Post, Wow! How? Health

Wow! How? Peer Warmline

May 9, 2024 By Susannah Fox Leave a Comment

Wow! How? Health

This essay is part of my LinkedIn newsletter series: Wow! How? Health. About two million people in North Carolina experience a mental health or substance use disorder crisis each year. Historically, about half did not receive treatment because of cost, leading to repercussions for families, communities, and individuals. A new Peer Warmline, staffed by counselors […]

Filed Under: Champions, Networkers, peer-to-peer health care, policy issues, Solvers Tagged With: Kody Kinsley, mental health, North Carolina, peer counseling, peer-to-peer healthcare, Promise Resource Network, Wow! How? Health

Wow! How? Hope for Henry

April 26, 2024 By Susannah Fox Leave a Comment

Cartoons of superhero kids getting medical treatments like an EEG, Central Line Dressing Change, COVID testing, and IV Placement or Blood Draw

Imagine being a little kid and facing not only serious illness, but all the uncomfortable, scary treatments associated with hospitalization: blood draws, IV placements, and scans. Then you find out that you can earn prizes for every medical procedure you go through, thanks to an incentive program called Super Rewards for Super Kids. Kids love […]

Filed Under: Solvers Tagged With: Allen Goldberg, Hope for Henry, Laurie Strongin, Rare Disease, rare diseases, Wow! How? Health

Wow! How? PEARS

April 12, 2024 By Susannah Fox Leave a Comment

Wow! How? Health

Tal Golesworthy lives with Marfan syndrome, which is characterized by long bones, flexible joints, eye problems, and, most threateningly, weakness at the root of the aorta. Over time, this major blood vessel becomes enlarged and, if left untreated, ruptures. Clinicians told Golesworthy he had few options, none of them attractive: wait and potentially experience a […]

Filed Under: Champions, Solvers Tagged With: Marfan syndrome, Rebel Health, Tal Golesworthy, Wow! How? Health

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Recent Comments

  • Susannah Fox on Lessons learned about hospice care: “Thank you for sharing!” Jul 30, 12:46
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