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Susannah Fox

I help people navigate health and technology.

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empathy

Parkinson’s For One Day

June 14, 2015 By Susannah Fox 10 Comments

Pill bottles

My new job is wonderfully immersive. I leave home early, come back late, and, in between, spend hours talking with people about the future of health, health care, and technology (broadly defined). The HHS IDEA Lab blog will be my outlet for sharing ideas related to the work I do there. This site will serve, as it […]

Filed Under: key people, others' e-patient stories, social media Tagged With: empathy, Parkinson's, Smart Patients

Cystic Fibrosis For One Day

March 29, 2015 By Susannah Fox Leave a Comment

Boy wearing nebulizer mask and his mom

I shadowed a mom and her 5-year-old with CF from afar for 24 hours. It taught me more than I could have imagined about living with a life-shortening disease — and about myself. This “empathy exercise” was organized by Smart Patients, an online community where patients and caregivers learn from each other.

Filed Under: e-patient stories, key people Tagged With: cystic fibrosis, empathy, Smart Patients

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Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12
  • Anonymousity on Rare Disease in the NYT: “I was captivated by Amanda Hess’s story. I too dove right in in reading all the way through the article…” Apr 25, 09:24
  • Susannah Fox on Rare Disease in the NYT: “Thank you, Dave! Yes, I’ve been a fan of Hess’s writing for a long time and now, well, I’m a…” Apr 23, 22:00

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