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Susannah Fox

I help people navigate health and technology.

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disability

Participation Matters–Susannah Fox

October 2, 2009 By Susannah Fox 6 Comments

In politics and in health care, participation matters as much as access. The passion we saw in the political campaigns last year is matched by the passion we see when someone is trying to save a life, find a better treatment, or just manage the health of a loved one. What are you doing in […]

Filed Under: Why PM Tagged With: American Adults, Benchmark, chronic disease, Definition Of The Internet, digital divide, disability, health care, health information, Internet Connections, Internet User, Internet Users, Internet Wirelessly, Laptop Cell Phone, Medical Advice, Mobile Access, Mobile Adoption, Participation, participatory medicine, Passion, pew internet project, Political Campaigns, Voices

E-patients With Chronic Conditions–Susannah Fox

October 9, 2007 By Susannah Fox Leave a Comment

Sometimes my research becomes a little too much for me to bear alone. Like when I find that people living with chronic disease and disability are among the least likely to have access to the internet, but who, once online, are among the most avid e-patients. Or when I am emailing with an ACOR member […]

Filed Under: patient networks Tagged With: ACOR, cancer, chronic disease, disability, e-patients

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Recent Comments

  • Susannah Fox on Jean Nidetch, Rebel Health leader: “Yes! I have enjoyed learning more about her personal story, which is a parable of midcentury feminism. WW was a…” May 9, 10:10
  • barbara figge fox on Jean Nidetch, Rebel Health leader: “Jean Neditch helped so many of us! She changed the landscape for weight reduction by leveraging peer support.” May 9, 08:11
  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33

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