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Susannah Fox

I help people navigate health and technology.

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COVID19

Wow! How? Patient-Led Research Scorecards

March 27, 2025 By Susannah Fox Leave a Comment

In Dark Times Shine Your Light Brighter

Most stakeholders in biomedical innovation – scientists, clinicians, patients, caregivers, funders, regulators – recognize each other as allies in the fight against disease. But they often lack shared principles and practices to guide the work they do together. For example, a research organization may say they value patient input, but they do not recognize their […]

Filed Under: Champions, Networkers, patient networks, research issues, Solvers Tagged With: Council of Medical Specialty Societies, COVID19, Emily Sirotich, Gary Wolf, Gina Assaf, Hannah Davis, Helen Burstin, Long Covid, Patient-Led Research Collaborative, PCORI, Quantified Self, Rebel Health, Wow! How? Health

A futurist’s perspective on LongCovid

April 7, 2021 By Susannah Fox 3 Comments

A field of sunflowers bathed in golden light

Maneesh Juneja is a dynamic person, both in person and online, and I’m proud to call him a friend and community colleague. Unfortunately, he has been living with LongCovid, the long-term effects of the COVID-19 virus, for nearly 12 months. If you have not yet watched his recent Health Datapalooza keynote, now is your chance: […]

Filed Under: health data, participatory research, patient networks, peer-to-peer health care Tagged With: Body Politic, COVID19, Health Datapalooza, LongCovid, Maneesh Juneja, sunflowers

LGBTQ+ youth are reaching out for help

March 24, 2021 By Susannah Fox 1 Comment

98% of LGBTQ+ youth have used digital tools for health purposes

In partnership with Vicky Rideout and I, Common Sense Media created fact sheets about multiple groups included in our national study (Latinx, Black, female, LGBTQ+ youth, to name a few) and I thought I’d share each slice of data in a series of posts. The complete survey findings, methodology, quotes from participants, fact sheets, and questionnaire […]

Filed Under: demographics, research issues, social media, trends & principles Tagged With: california healthcare foundation, Common Sense Media, COVID19, HopeLab Foundation, LGBTQ, mental health, Vicky Rideout

Depression, social media use, and digital health

March 22, 2021 By Susannah Fox 9 Comments

Half of those with moderate to severe symptoms of depression have looked online for people with similar health concerns and 75% have used health apps

In partnership with Vicky Rideout and I, Common Sense Media created fact sheets based on our national study and I thought I’d share slices of data in a series of posts. The complete survey findings, methodology, quotes from participants, fact sheets, and questionnaire are available here. Here’s the 10-second summary for this featured group,  young people […]

Filed Under: demographics, research issues, social media, trends & principles Tagged With: california healthcare foundation, Common Sense Media, COVID19, HopeLab Foundation, mental health, Vicky Rideout

The Data Puzzle of Our Time

February 16, 2021 By Susannah Fox 4 Comments

Gloved hands administering a shot to an arm

When the pandemic hit, we needed both grassroots and industrial-strength data platforms to effectively respond to the crisis. I have written about scrappy, patient-led data innovation. Today I want to share a broader view, thanks to a conversation I recently had with Tim Paydos, Vice President & General Manager of IBM Government. (I’m proud to disclose […]

Filed Under: health data, key people Tagged With: COVID19, IBM

How connection can lead to change

November 11, 2020 By Susannah Fox 30 Comments

Screenshot of Harvard Business Review article about how chronic disease patients are innovating together online

In April, Harvard Business Review published my article, “How Chronic-Disease Patients Are Innovating Together Online.” Since then I’ve been collecting other stories about people gathering online to solve their own problems — an innovation pipeline powered by what I call peer-to-peer health care. Fortunately and unfortunately, there are many examples. People living with long-term effects […]

Filed Under: patient networks, peer-to-peer health care Tagged With: All of Us, Body Politic, Brene Brown, cdc, COVID19, LongCovid, Quantified Self

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