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Susannah Fox

I help people navigate health and technology.

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The impact of the internet on one man’s life

March 13, 2012 By Susannah Fox 9 Comments

Nell Minow is a movie critic and corporate governance watchdog (yep, both). She and I were seated together at a luncheon a few weeks ago, part of a weekend-long meeting on leadership. We had just watched the movie, Act of Valor, and began talking about different kinds of leaders and heroes — those who seek […]

Filed Under: e-patient stories, internet geology Tagged With: Americans With Disabilities Act, bulletin boards, Facial Paralysis, Hearing Loss, Indomitable Spirit, Moebius Syndrome, Navy Seals, Nell Minow, Rare Disease

Patient-Driven Content at MedShelf.org–Susannah Fox

May 10, 2007 By Susannah Fox Leave a Comment

Online support groups have long been recognized as an important and unique source of medical information and social support for patients. Derek Hansen, Paul Resnick, and Sean Munson at the University of Michigan’s School of Information, are trying to help online support groups create community repositories using wiki software at http://medshelf.org.

Filed Under: patient networks Tagged With: bulletin boards, derek hansen, e-patients, email listserves, health information, medshelf, online support groups, patient networks, university of michigan, wiki

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Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12
  • Anonymousity on Rare Disease in the NYT: “I was captivated by Amanda Hess’s story. I too dove right in in reading all the way through the article…” Apr 25, 09:24
  • Susannah Fox on Rare Disease in the NYT: “Thank you, Dave! Yes, I’ve been a fan of Hess’s writing for a long time and now, well, I’m a…” Apr 23, 22:00

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