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Susannah Fox

I help people navigate health and technology.

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Andrew Schorr

President’s Cancer Panel: Input, Please–Susannah Fox

November 30, 2010 By Susannah Fox 36 Comments

What evidence would you bring to convince cancer researchers and policy makers to pay attention to how the internet is changing health and health care? That’s my challenge for the Dec. 14 meeting of the President’s Cancer Panel, “The Future of Cancer Research: Accelerating Scientific Innovation” (PDF of the agenda).

Filed Under: policy issues, pts as teachers, research issues Tagged With: ACOR, Andrew Schorr, Bill Claxton, cancer, Center For Studying Health System Change, Chordoma, Erin McCartney, hints, Institute Of Medicine, national cancer institute, Palo Alto Medical Foundation, patientslikeme, Pew Internet

Breaking News at Hematology Meeting – for Patients–Susannah Fox

December 11, 2008 By Susannah Fox 9 Comments

Andrew Schorr is the founder of Patient Power, LLC, and shares this dispatch, his second for e-patients.net: I had a whirlwind weekend at the Moscone Center in San Francisco where I broadcast five and a half hours of live interviews with leading hematologists and hematologist/oncologists on the latest news in a variety of chronic conditions. […]

Filed Under: key people, net-friendly docs Tagged With: Andrew Schorr, chronic lymphocytic leukemia, chronic myelogenous leukemia, lymphoma, multiple myeloma, Patient Power, podcasts, sickle cell anemia

Patient Power: Andrew Schorr–Susannah Fox

October 6, 2008 By Susannah Fox 6 Comments

Andrew Schorr‘s recent comment also merits a separate post: I am a 12-year leukemia survivor and very grateful to the ACOR community members who helped me numerous times along the way. I have dedicated my life to creating community online and also, in a supplementary way, on radio. But my concept of community is a […]

Filed Under: e-patient stories, others' e-patient stories Tagged With: Andrew Schorr, Better Health, Bladder Cancer, Brain Tumor, Cnn, Common Goal, Generous Support, Health Care Professionals, Health Concerns, Lung Cancer, M D Anderson, Medical Centers, Myomectomy, Patient Comments, Patient Power, Renowned Experts, Team Approach, Trusera, Uterine Fibroids, Young Adults

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Recent Comments

  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33
  • Samantha Bridge on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Great conversation. It has been my experience as a nurse to have the conversation before the testing. What is the…” May 4, 09:05
  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12

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