Deborah Kalb’s blog is a treasure chest full of Q&As with authors and illustrators and I’m honored to now be part of it. 1. What inspired you to write Rebel Health, and how was the book’s title chosen? As a researcher, I spend time in communities led by patients and caregivers who build new medical and assistive […]
Networkers
The Other 80
Claudia Williams created The Other 80 podcast to talk about how medical care only accounts for 20% of health outcomes. The other 80% includes factors like food, housing, transportation options, social connection, etc. I was honored to be interviewed for episode #27, now available wherever you listen to podcasts. You can hear in my voice […]
Wow! How? Community as therapy
Social isolation prevents people from getting help. The effect is amplified among people living with serious mental illness. They are the most in need of community support, yet are the least likely to get it in a health care system that is primarily focused on clinical interventions like medication. A recent report by M. Usman, […]
Wow! How? Dr. Reddit
A positive psychedelic experience can make you feel at one with the universe. A bad trip can make you feel psychotic. People who want a relatively safer experience have two choices: 1. Ask a friend to stay sober and be a calming guide (called a “trip sitter”) 2. Have remedies on hand to blunt or […]
Wow! How? Patient Data Rights
Until relatively recently, people living with diabetes were shut out of conversations about improving the devices that keep them alive. Device manufacturers saw clinicians as their customers, not patients, and nobody was asking them to change that stance, including the FDA. Patients and their loved ones were grateful to have insulin pumps and continuous glucose […]
Wow! How? Community Consults
“Lana,” a woman I interviewed who asked that her real name not be used, lives with mitochondrial disease and is an active member of a private Facebook group of people who share her diagnosis. Some of the members have become experts in drug interactions particular to “mito” and offer guidance to others based on their […]
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