PatientsLikeMe opened up to every condition today. From their press release: Today, PatientsLikeMe (www.patientslikeme.com) announces the expansion of its platform and invites patients with any condition to join. The five-year-old free online health data-sharing website was previously only available to patients with 22 chronic conditions (including ALS, Parkinson’s disease, HIV, depression, epilepsy, fibromyalgia, multiple sclerosis and organ […]
An ode to health data rights
Fun for Friday: David Hale singing an ode inspired by Regina Holliday and e-Patient Dave:
Peer-to-peer healthcare on NPR
To me, there are two types of breaking news in health care: the macro and the micro. Macro health news breaks when there is a natural disaster, a scientific breakthrough, or a new twist in a policy debate (see: “ACOs“). I read up on the facts and try to make sense of the latest turn […]
What if information spread more quickly than a virus?
On March 11, the White House hosted an event to mark National Women and Girls HIV/AIDS Awareness Day. The event was livestreamed from whitehouse.gov and is archived on YouTube: I have written before about the unique nature of conferences concerning sexually-transmitted infections, but I didn’t expect to hear the same frank talk at a White […]
How can a community organization tap into the health dev craze?
Updated on 3/24/2011: I recently met the director of a community health organization A. Toni Young, founder and executive director of the Community Education Group here in Washington, DC. She has big dreams for harnessing the power of her clients’ health data but few resources to make the dreams come true. I told her a […]
Peer-to-peer Healthcare at the White House–Susannah Fox
It’s hard to say this without sounding like I’m bragging, but that’s not going to stop me: I’m going to the White House tomorrow to talk about Pew Internet Project’s latest research on peer-to-peer healthcare.
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