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Susannah Fox

I help people navigate health and technology.

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Susannah Fox

Was it a keynote? Or a seismic warning?

March 6, 2013 By Susannah Fox 9 Comments

Eric Topol’s keynote at HIMSS13, a massive health IT event, was a tsunami of ideas and visions for the future of health care. I wasn’t there, so I salvaged what washed up on my shore as a Storify. Why? Because I’m an internet geologist. I look for early warning signs of possible futures and Topol […]

Filed Under: net-friendly docs, positive patterns Tagged With: Eric Topol, HIMSS, internet geologist, mobile, tracking

Rare Disease Day 2013

February 28, 2013 By Susannah Fox 5 Comments

People living with rare conditions inspire my work every day. A few resources to check out: Follow @RareDiseaseDay on Twitter or subscribe to my Rare Disease list Read Wendy White’s post on e-patients.net: Rare Disease Day 2013: Help Spread Awareness Read the Pew Research Center’s report featuring insights from people living with rare conditions: Peer-to-peer […]

Filed Under: key people, peer-to-peer health care Tagged With: National Organization For Rare Disorders, Rare Disease, Wendy White

Tell all the truth but tell it slant

February 26, 2013 By Susannah Fox 5 Comments

Scanning tweets from the current Institute of Medicine event (#iomPwP) brought a poem to mind: Tell all the Truth but tell it slant — Success in Circuit lies Too bright for our infirm Delight The Truth’s superb surprise   As Lightning to the Children eased With explanation kind The Truth must dazzle gradually Or every […]

Filed Under: beauty and wonder, key people Tagged With: Dave Clifford, Emily Dickinson, Institute Of Medicine, truth

How many people use “ask a doctor” sites?

February 25, 2013 By Susannah Fox 7 Comments

Here’s a question I received that I thought was worth a public answer: How many people go online to seek a doctor’s opinion about something, such as on an “ask a doctor” site? Pew Research has not asked a survey question that specifically measures that activity, but we have something pretty close, based on our […]

Filed Under: peer-to-peer health care, public Q&A, trends & principles

“A jumbo jet a day” – who said it?

February 22, 2013 By Susannah Fox 41 Comments

View of clouds and an airplane wing

I’m looking into public perceptions of patient safety as a possible research topic and have run up against a question I can’t answer. Can you help?

Filed Under: hc's problem list, policy issues Tagged With: AHRQ, Institute Of Medicine, patient safety, To Err is Human

A mirror and a window

February 19, 2013 By Susannah Fox 9 Comments

Airplane window view of a city by A30_Tsitika

I’ve been thinking about the role of the Pew Research Center* in the world, particularly in regard to how we communicate and disseminate our work. Here is my idea: We are both a mirror and a window. We hold up a mirror to society, reflecting back the current state of all sorts of things, like marriage, […]

Filed Under: participatory research, peer-to-peer health care, research issues, social media Tagged With: participatory research, Pew Internet, Pew Research Center

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Recent Comments

  • Susannah Fox on Lessons learned about hospice care: “Zoe, thank you for the unvarnished comment! We need to go into end of life with our eyes open in…” Aug 5, 14:20
  • Zoe on Lessons learned about hospice care: “I despise home hospice and the entire industry can kiss my ass. I was duped into caring for my dying…” Aug 5, 03:45
  • Susannah Fox on Lessons learned about hospice care: “Thank you for sharing!” Jul 30, 12:46

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