Find a bit of beauty in the world today.Share it. If you can’t find it, create it.Some days this may be hard to do.Persevere. – Lisa Bonchek Adams Today would have been the 92nd birthday of my “third grandfather,” Mitsuru Yasuhara. One of my goals for his final weeks was to spark joy at least […]
Case study: Recurrent fever
Anyone who has endured a multiple-day fever — or cared for someone with one — knows how exhausting it can be. Imagine experiencing nine weeks of a mysterious elevated temperature. Then nine MONTHS of what feels like a personal broken thermostat. And clinicians have little to no explanation besides plans for future tests. That’s the […]
Wow! How? In-your-face Expertise
This post is part of my LinkedIn series: Wow! How? Health. I welcome comments on either platform. Thirty-three years ago today, on September 5, 1991, activists unfurled a giant, inflatable condom over a U.S. Senator’s house. Don’t believe me? Watch a 30-second news clip or a 5-minute documentary about the action. It was a splashy way […]
Wow! How? Patient Memoirs
In his book, The Long Haul, Ryan Prior writes about his advocacy on behalf of people with ME/CFS: Though I had negotiated a fragile truce with the disease, my deeper fear was that it would eventually fully disable me, just as it had done for so many of my friends…At the edge of my every thought […]
Wow! How? Peer Support for Queer Youth
Today’s “wow” is unfortunately a troubling statistic: 49% of LGBTQ+ young people in the U.S. experience depressive symptoms, according to a survey conducted by Hopelab and Common Sense Media, compared with 24% of their straight and cisgender peers. But many Queer youth are meeting the challenge by accessing online therapy to a greater degree (44%, […]
Wow! How? Patient-led Biodesign
This post is part of my LinkedIn series: Wow! How? Health. Jules Sherman designs pediatric medical products, like a delayed cord-clamping cart and a special robe to help make neonatal skin-to-skin care safer. In 2016, she was called into a hospital room to observe a new mom using a device that Sherman had created to collect […]
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