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Susannah Fox

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Designing Peer-to-peer Health

February 10, 2022 By Susannah Fox Leave a Comment

Designing Peer-to-peer Health

“How can peer to peer connection make a healthier society? Can Amazon reviews give us fresh insight into our health? Why do on-line patient communities represent an incredible untapped resource in healthcare? How can a co-designed death give us a fuller life?”

Bon Ku and I explore these questions and more in Episode 59 of his podcast, Design Lab. It’s the most personal public conversation I’ve engaged in, so please give it a listen and let me know if it inspires your own thinking in new ways.

Here are some of the resources and people I mention:

  • Paul Tarini, originator of my favorite title: Internet Geologist
  • John Costik and the Nightscout project
  • Sara Riggare‘s 1 in 8,765 illustration (which I got wrong in the interview – oops!)
  • JAMA study of crowd-diagnosing on r/STD (and my take on it)
  • Injection tips (an example of peer-to-peer health advice)
  • Jodi Ferrier and Laurie Strongin, two of my peer mentors (they challenged me to write this Harvard Business Review article)
  • Elegy for A. and M. (how Mitsuru and I started our care partner co-design project)
  • Lessons learned about hospice care (how it ended)
  • Alexandra Drane, creator of Engage With Grace (a worksheet for end-of-life conversations), co-founder of Archangels (a company reframing caregiving and proving there’s an ROI on love, co-founded with Sarah Stephens Winnay)
  • BJ Miller, creator of Mettle Health (during Mitsuru’s final days, I watched BJ’s TED talk every morning and kept a copy of A Beginner’s Guide to the End close by)
  • Yoko Sen, creator of My Last Sound

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Filed Under: end of life, peer-to-peer health care Tagged With: Alexandra Drane, BJ Miller, Bon Ku, Engage with Grace, Jodi Ferrier, John Costik, Laurie Strongin, Nightscout, podcast, Sara Riggare, Sarah Stephens Winnay, Yoko Sen

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  • Susannah Fox on Seekers go out on the hunt: “Thank you, Cam! So many nuggets of wisdom in your comment. Love the old-school spiral notebook combined with the digital…” May 20, 15:09
  • Cam Teems on Seekers go out on the hunt: “Susannah – First, as a seeker on behalf of my child, I had to gird my loins and know I…” May 19, 16:56
  • Susannah Fox on Caregiving is not a “career break”: “Thanks for the tip, Diane. Is this the article you read? Family Caregiving: A View From the Inside https://www.aarp.org/caregiving/home-care/info-2022/history-of-family-caregiving.html I…” May 9, 08:59

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