Over on the Inkwell, our own Jon Lebkowsky is interviewing Clay Shirky, author of “Here Comes Everybody.” My favorite quote so far: “The places where experts matter and flourish are places where it is expertise, rather than authority (which is to say knowledge and experience, rather than imprimatur and access to public expression) that give […]
Archives for May 2008
Consumers talk back to CNN’s Empowered Patient–Susannah Fox
For several informative empowered patient stories, see the Comments at bottom of this post. CNN’s Empowered Patient column, by medical correspondent Elizabeth Cohen, contains good, if not groundbreaking, advice, plus the occasional exaggeration or misconception. For example, here on e-patients.net, Charlie Smith praised the Empowered Patient column on misdiagnosis; Gilles Frydman dismantled the tips on […]
The Plausible Promise of Participatory Medicine–Susannah Fox
I think participatory medicine is what Eric Raymond calls a “plausible promise”: something big enough to inspire interest yet achievable enough to inspire confidence. Reforming health care is too big for most people to grasp; creating spaces for participatory medicine is not. E-patients are already finding, sharing, and mashing up health information online. If you […]
Patient Activism–Susannah Fox
If you have doubts about the impact of social media on health care, please read this 2005 post on The Health Care Blog about a grandmother’s campaign on behalf of her grandson. There’s a lot of heart (and snark) in the comments.
Upcoming Conferences–Susannah Fox
I’ll be in Boston tomorrow for a World Congress Leadership Summit. The organizers certainly use all the right key words to describe the event; I’m kind of hoping the presenters get to wear purple robes or something to match the superlatives. The next conference I’ll attend will be in DC. I asked Josh Seidman, president […]
E-patient Interview: Sheryl Stein
Sheryl Stein, known to many as “wrekehavoc,” dispenses her wisdom and humor on a 6,000-member online community of parents (using good old listserve technology) and on her blog. In this third edition of our e-patient interviews, Sheryl talks about the power of community and how “reaching out via the internet is now an ingrained habit […]
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