Participatory medicine and health data rights on NPR–Susannah Fox

NPR’s Morning Edition story, “Patients Turn to Online Buddies for Help Healing,” combined research and real-life examples, participatory medicine and health data rights.

Much of what I said during my interview with Joseph Shapiro is based on what I’ve written and read here on, so, first, thank you.

I’ve already started answering questions on Twitter about some of the assertions in the story, so let’s keep the conversation going here, too. Continue reading