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Susannah Fox

I help people navigate health and technology.

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What if health care…?

February 8, 2013 By Susannah Fox 3 Comments

Sunflowers by Stuck in Customs on Flickr

For over a year I’ve been the accidental manager of a community garden. All I did — I swear — is point out an open plot of land and people started pitching in, planting, asking friends to join them. All of a sudden we’d transformed a bare patch into something beautiful. I thought for sure […]

Filed Under: hc's problem list, positive patterns, reforming hc Tagged With: #whatifhc, Health Foo

The boy with a thorn in his joints (and the mom who turned over every rock)

February 6, 2013 By Susannah Fox 8 Comments

Questions marks painted on pavement

When I was writing the Pew Research report, “Peer-to-peer Healthcare,” I switched back and forth between numbers and stories, national survey data and notes from my fieldwork among people living with rare conditions. I learned to scan my spreadsheet of rare-disease respondents for women’s names since they seemed to stop at nothing to protect their […]

Filed Under: e-patient stories, peer-to-peer health care Tagged With: moms, New York Times, peer-to-peer healthcare, Rare Disease, rare diseases

A moment of peace

January 31, 2013 By Susannah Fox 2 Comments

Marcin Ryczek image of a man feeding swans in the snow

Filed Under: beauty and wonder

Join a discussion about “Tracking for Health”

January 28, 2013 By Susannah Fox Leave a Comment

“When our observations about ourselves are formally collected, rather than just remembered, it’s easier to get advice and comment, and to improve our reasoning with the help of others. ‘Remember kids, the only difference between screwing around and science is writing it down,’ said Adam Savage of Mythbusters. Technology helps us write it down.” – Ernesto Ramirez, […]

Filed Under: trends & principles Tagged With: Pew Internet, Quantified Self, tracking

Sneak preview: Tracking for Health

January 25, 2013 By Susannah Fox Leave a Comment

This interview was recorded at Stanford Medicine X where I gave a sneak preview talk about the report Pew Internet is releasing on Monday, “Tracking for Health.” Joyce Ho is a fabulous interviewer — as a med student, she definitely adds her own insights to the conversation about our findings.

Filed Under: trends & principles Tagged With: Stanford Medicine X, tracking

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Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Liz, thank you for sharing this comment! I’m sorry for your loss and the experience you went through. Thank you…” Jul 4, 12:05
  • Liz on Rare Disease in the NYT: “The author’s willingness to grapple with her competing instincts is admirable. As a former “medical mom,” I found the peer-connection…” Jul 1, 21:46
  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07

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