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Susannah Fox

I help people navigate health and technology.

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Evolution of online patient communities

February 1, 2014 By Susannah Fox 28 Comments

A conversation broke out on Twitter this morning about the evolution of online patient communities — how some people prefer to stick with older, familiar, “it just works” technologies rather than try to migrate to a new platform. Catch up by reading this Storify. I’d love to work on this with the health geek tribe […]

Filed Under: e-pts resources, patient networks Tagged With: Facebook, Smart Patients

On Purpose

January 29, 2014 By Susannah Fox 24 Comments

A stylized dung beetle from On Purpose

Research shows that if you can connect to a higher purpose, you will be more likely to reach your health goals. For example, the most effective treatment for hepatitis C is interferon, a drug that requires self-injection and has some very nasty side effects, like fatigue, anxiety, nausea, and skin rashes. It is very difficult […]

Filed Under: key people, social media Tagged With: adherence, David Sifry, Hepatitis C, Lisa Gualtieri, On Purpose, Pamela Ressler, Vic Strecher

Flip it

January 25, 2014 By Susannah Fox 26 Comments

Regina Holliday's painting for the Families USA conference

Families USA invited me to talk this morning about the intersection of health care, social media, and digital strategy, along with Regina Holliday and Larry Swiader. I decided to flip the presentation and start the conversation a week in advance, on Twitter, and post my slides publicly. If you’re not familiar with the idea of […]

Filed Under: social media Tagged With: Bedsider, flip teaching, Flip the Clinic, Regina Holliday

The network is our superpower

January 20, 2014 By Susannah Fox 22 Comments

Justice League by roadkillbuddha on Flickr

My kids love to talk about superpowers — the ability to fly, to heal, to be in two places at once, or to have super-strength. We debate the merits of each one, which combinations we would choose if we could have two, etc. I’ve come to realize that I have a superpower. We all do. […]

Filed Under: peer-to-peer health care, social media Tagged With: Dan Fleshler, diabetesmine, Lisa Bonchek Adams

Oversharing is in the eye of the beholder

January 15, 2014 By Susannah Fox Leave a Comment

I got to quote Thomas Jefferson in an essay I wrote for the Pew Research Center’s FactTank blog today: “Who then can so softly bind up the wound of another as he who has felt the same wound himself?” It’s about Lisa Bonchek Adams and the spotlight that has been thrown on the use of […]

Filed Under: peer-to-peer health care Tagged With: #bcsm, peer-to-peer healthcare, Pew Research Center

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