Kat McGowan and NPR asked people: “How did caregiving change you? How do you cope with the hard parts? What have you learned that you’d like to share with others?” I was among 600+ people who answered and now their Caregiver’s Survival Guide is up — and it’s wonderful. Here’s a quote I felt in […]
SSRS
Caregiving in America
I am thrilled to share results from my collaboration with SSRS and ARCHANGELS, “Caregiving in America: The Common Thread in Every Community.” Here are excerpts from our report: Our nationally representative sample of n=2,012 U.S. adults finds that in the year prior to the survey, 36 percent of Americans provided unpaid care to a family […]
Rare Disease in the U.S. 2025
Rare disease communities welcomed me as a researcher, inspired me to highlight their ingenuity in my book, Rebel Health, and now I am honored to share results from the first probability-based national survey to measure the rare disease population. I partnered with my former Pew Research colleague Kristen Purcell, now at SSRS, to write the […]
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