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Susannah Fox

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SSRS

Caregiver Survival Guide

October 22, 2025 By Susannah Fox 2 Comments

Gen Z are Caregivers Too 27% of 18-29 year-olds report providing unpaid care to a friend or family member in the year prior to the survey.

Kat McGowan and NPR asked people: “How did caregiving change you? How do you cope with the hard parts? What have you learned that you’d like to share with others?” I was among 600+ people who answered and now their Caregiver’s Survival Guide is up — and it’s wonderful. Here’s a quote I felt in […]

Filed Under: peer-to-peer health care Tagged With: ARCHANGELS, Atlas of Care, caregivers, npr, SSRS

Caregiving in America

September 25, 2025 By Susannah Fox 2 Comments

Caregiving is a universal experience cutting across all demographic lines, including political party affiliation

I am thrilled to share results from my collaboration with SSRS and ARCHANGELS, “Caregiving in America: The Common Thread in Every Community.” Here are excerpts from our report: Our nationally representative sample of n=2,012 U.S. adults finds that in the year prior to the survey, 36 percent of Americans provided unpaid care to a family […]

Filed Under: demographics, peer-to-peer health care, trends & principles Tagged With: ARCHANGELS, caregivers, SSRS

Rare Disease in the U.S. 2025

February 25, 2025 By Susannah Fox Leave a Comment

Two zebras

Rare disease communities welcomed me as a researcher, inspired me to highlight their ingenuity in my book, Rebel Health, and now I am honored to share results from the first probability-based national survey to measure the rare disease population. I partnered with my former Pew Research colleague Kristen Purcell, now at SSRS, to write the […]

Filed Under: peer-to-peer health care, trends & principles Tagged With: ARCHANGELS, artificial intelligence, ChatGPT, Gemini, peer-to-peer healthcare, Pew Internet, Pew Research Center, Rare Disease, Rebel Health, SSRS, telehealth

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Recent Comments

  • Susannah Fox on Caregiver Survival Guide: “Great question! When the downhill run toward discharge began for Mitsuru, he had been in the hospital for about 10…” Oct 23, 10:46
  • Dave deBronkart on Caregiver Survival Guide: “As I age and see my lifelong peers start to decline, this brings tears to my eyes. Thank you again.…” Oct 22, 10:17
  • Susannah Fox on Patient Input on Clinical Trials: “Great question, thank you! My impression is that our best bet is to make it appeal to study sponsors as…” Oct 17, 10:26

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