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Susannah Fox

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scurvy

How did we get here? And where are we going?

July 15, 2014 By Susannah Fox 17 Comments

The Vasa, which sank on its maiden voyage in 1628

Video of my talk in Sweden is now online (skip to minute 7 unless you speak Swedish): It’s a comprehensive summary of my research so far, as well as an argument for listening to patients and caregivers as we move forward into the future. I opened with an example that was inspired by a visit […]

Filed Under: participatory research, patient networks, peer-to-peer health care, trends & principles Tagged With: C3N Project, cystic fibrosis, patientslikeme, peer-to-peer healthcare, Pew Internet, Pew Research Center, scurvy, Sweden, video

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Recent Comments

  • Susannah Fox on Caregiver Survival Guide: “Great question! When the downhill run toward discharge began for Mitsuru, he had been in the hospital for about 10…” Oct 23, 10:46
  • Dave deBronkart on Caregiver Survival Guide: “As I age and see my lifelong peers start to decline, this brings tears to my eyes. Thank you again.…” Oct 22, 10:17
  • Susannah Fox on Patient Input on Clinical Trials: “Great question, thank you! My impression is that our best bet is to make it appeal to study sponsors as…” Oct 17, 10:26

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