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Susannah Fox

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Medicine

Participatory medicine and health data rights on NPR

November 16, 2009 By Susannah Fox 10 Comments

NPR’s Morning Edition story, “Patients Turn to Online Buddies for Help Healing,” combined research and real-life examples, participatory medicine and health data rights. Much of what I said during my interview with Joseph Shapiro is based on what I’ve written and read here on e-patients.net, so, first, thank you. I’ve already started answering questions on […]

Filed Under: general, health data Tagged With: Answering Questions, Assertions, Buddies, Case Mix, Collective Decisions, Health Care Decisions, Health Care Revolution, Health Data, health information, Health Professionals, Health Searches, Health Systems, John Horrigan, Joseph Shapiro, Medicine, Medicine And Health, Mediums, npr, Offline Sources, Pareto Principle, Partnership, Person Accounts, Pew Research Center, Real Health, Tom Ferguson, Twitter, Walks Of Life

Age of Participatory Medicine–Susannah Fox

August 20, 2009 By Susannah Fox Leave a Comment

Kevin Kruse posted a video yesterday which includes this line:  The age of participatory medicine has begun. It’s a promo for e-Patients Connections 2009, a conference to be held in Philadelphia this October, but also has good citations (ahem, including my reports).  See what you think.

Filed Under: found on the net Tagged With: Citations, Kevin Kruse, Medicine, Participatory, Philadelphia

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