Deborah Kalb’s blog is a treasure chest full of Q&As with authors and illustrators and I’m honored to now be part of it. 1. What inspired you to write Rebel Health, and how was the book’s title chosen? As a researcher, I spend time in communities led by patients and caregivers who build new medical and assistive […]
Search Results for: internet access
Wow! How? Patient-Led Research
A scientific journal article written primarily by patients about their health condition has been downloaded over a million times. We reached this milestone after years of activism, advocacy, and demands for justice. The internet supercharged everyone’s ability to connect with information and with each other. The crucible of the pandemic then forced us into new […]
Rebel Health
My book, Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care, is now available in paperback wherever books are sold. For bulk orders, try Porchlight. I wrote this book for two groups of people: 1. Anyone who feels alone, forgotten, or lost in the shadows of suffering, whether they are navigating a new diagnosis […]
Consumer-strength tools,
industrial-strength innovation
On August 31, I’ll be part of the 2021 Federal Wearables Summit. This post is my attempt to “flip” the event by sharing what I intend to say. Please let me know what you think in the comments below. In 1986, Eric von Hippel of MIT identified “lead users” as people who identify and solve […]
Inventing the future
If you want to meet the future faster, go out to the edges of your field of vision. Find out what pioneers and rebels are doing and learn from them. Sometimes that means taking a virtual helicopter ride up to the zenith of tech development, as I did recently, watching Dario Gil, SVP and Director […]
Bio
Here’s a short version of my bio: Susannah Fox is a health and technology strategist. Her book, Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care, was published by MIT Press in 2024. She is a former Chief Technology Officer for the U.S. Department of Health and Human Services, where she led […]
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