Thanks to multiple requests, and our hope to be useful and responsive to our audience, the Pew Research Center posted a preliminary version of the September 2012 health survey data. Please note that this version includes the topline, questionnaire, CSV file, and SPSS file. Here’s an explanation of our data resources if you have questions about […]
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Research, writing, and the public conversation
I’m crunching survey data nonstop these days, writing two reports to be published in January, so I’m not leaving my writing cave office very often. But before I went into quiet mode, I recorded a podcast with Fran Melmed and Carol Harnett, hosts of the CoHealth Checkup. They elicited some stories I haven’t told elsewhere […]
“As She Lay Dying” – a son calls on the health system to involve patients and families in improving safety
Warning: this doesn’t end well. Not for anyone in the story. Unless it changes you, as it did me. Jonathan Welch, MD, teaches at Harvard Medical School and practices in the ER at Brigham and Women’s Hospital in Boston. But, as is often the case in life, the information that really matters is more personal: […]
Why fieldwork in patient communities is essential
Thanks to a tweet from Brian Ahier, I’m re-reading Internet Health Resources from 2002. It was the first time we’d done extensive online fieldwork in addition to national phone surveys, yielding stories like this one: One mother told how, when she suspected that her daughter had a serious respiratory infection called RSV, she looked it […]
What I learned at Health Foo
Update on Feb. 7, 2019: There are so many broken links, I’m de-linking and crossing them out but not deleting them, for posterity. They once worked! Just in case anyone is curious: my notes from Health Foo, a meeting held last weekend in Cambridge, MA. It’s long, so skim for the 9 lessons if you […]
Are patients knights, knaves, or pawns?
Sachin Jain and John Rother’s JAMA commentary, “Are Patients Knights, Knaves, or Pawns?” is an article that begs to be shared. The first time I read it I had to stand up, I was so excited — how can I design a survey to capture these questions?! was my first thought. My second thought was […]
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