The Pew Hispanic Center and the Robert Wood Johnson Foundation released a report today that is required reading for anyone interested in a more nuanced picture of the e-patient population: “Hispanics and Health Care in the United States: Access, Information and Knowledge.”
Search Results for: internet access
E-patients with Agency (or Attitude?)–Susannah Fox
What are the social and psychological factors that affect how someone is treated — or even their health outcomes? This question has popped up in my reading and in my work quite a bit this week, so I wanted to share what I have learned from three leading thinkers: Peggy Orenstein, Dr. Jeffrey Lin, and […]
Patriotic Participation–Susannah Fox
[Don’t miss yesterday’s related post about the founding heroes of patient empowerment.] Something important is afoot in the land when people are able to access and share “industrial strength” information instead of being satisfied with the “consumer strength” information previously offered to them. In the political arena, 39% of internet users (29% of all adults) […]
Data and Insights on Minority Populations–Susannah Fox
The Pew Internet Project‘s sample sizes for health surveys have been too small to do in-depth analysis on race/ethnicity and economic status. One challenge is that a significant portion of the respondent pool refuses to answer the household income question (the refusal rate can be as high as 20%). So we use education levels as […]
E-patient Interview: Keith Schorsch–Susannah Fox
When Keith Schorsch began suffering from facial paralysis, fatigue, and severe muscular and skeletal pain, eleven doctors failed to identify the cause. Luckily, a friend recognized the symptoms as similar to what she had suffered when she had Lyme disease – and that’s the clue that saved Keith. Keith turned his experience into a consumer […]
The Plausible Promise of Participatory Medicine–Susannah Fox
I think participatory medicine is what Eric Raymond calls a “plausible promise”: something big enough to inspire interest yet achievable enough to inspire confidence. Reforming health care is too big for most people to grasp; creating spaces for participatory medicine is not. E-patients are already finding, sharing, and mashing up health information online. If you […]
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